I think the frustration with some on this board who have found out that they have Lyme is that they were originally diagnosed with some form of autoimmunity, only to later get a lyme diagnosis and find relief w/ treatment. This unfortunately leads to the bias that every autoimmune disease is caused by some form of infection.
I have spent time in Lyme groups, and autoimmune groups. I can assure you that for just as many people who are frustrated with being diagnosed with autoimmunity only to find they have lyme, there is probably a greater number of people who were told they have Lyme, treat w/ antibiotics, get nowhere, feel taken advantage of, and end up w/ a diagnosis of Sjogrens or some other autoimmune disease.
If I had to guess, finger in the air, I would guess that less than 2% of people with autoimmunity have Lyme as the primary contributing factor. To be quite frank, it's actually normally a viral infection, not a bacterial, which has been shown to cause many AI diseases. And this is what I've noticed anecdotally in the chat rooms. The amount of anecdotes of people getting sick after a GI or respiratory viral infection greatly outweight those with an EM rash.
The simple fact of that matter is that the universe of autoimmunity is much larger than that of Lyme, and autoimmunity is on the rise. It is a disease of the modern world. Diet, stress, infections, toxicities, trauma, it normally takes a combination of these things to end up at that point, including genetic vulnerability. And often times, it's nearly impossible to tell what caused it and why. Some people are able to reverse it with diet, treatment of infections, destressing. I'm making improvements with my diet. But the sad fact is there are a lot of diseases out there that once they've taken hold, are very tough to reverse. To suggest that someone with myasthenia gravis or multiple sclerosis for example, can be saved by antibotics just isnt scientifically correct.
Post Edited (dcd2103) : 10/23/2020 10:18:42 AM (GMT-6)