My PET MRI noted several white hyperintensities, front temporal caloric changes and significant hippocampal volume loss.
A lot of different problems can cause these changes. An infection commonly does it, but they’re also seen in autoimmune diseases like Sjogrens, celiacs, etc
Dr Youngers book The Autoimmune Brain is a good read. Have you ruled out celiacs?
Good news is the brain is extremely neuroplastic, if you can stop the insult you can recover
Yah I can rule out celiac. Ive always tested negative for the antibodies and haven't eaten gluten in at least 10 yrs anyway. I sometimes wonder if I do have autoimmune encephalitis, though.Oh there’s some form of encephalopathy/brain inflammation going on for sure. You’ve got both symptoms and mri changes.
Wish you could try IVIG. Although it isn’t the miracle cure for me, it is for a lot of peopleMe too. My current doc sent a recommendation for me to see an immunologist in hopes I can get IVIG. He gave me a pneumonia vaccine first and took blood before and after to show that my immune response is too low. Hoping that will work
My SPECT scan shows tons of hypoperfusion as well. There's been something knarly going on for a long time and somehow after 10 years and 34 doctors I still have no idea what it is