Any opinions on my new MRI?

Had to get a new brain MRI and there is new stuff on it that wasn't a few years ago. I know we're not doctors but wondering if anyone has ideas

"Faint left-sided punctuate periventricular white matter signal hyperintensity is noted. Differential diagnosis would include minimal changes associated with migraine headaches or micro vascular disease. Alternative, less likely differential diagnostic possibilities to be considered are Lyme Disease, sarcoid, vasculitis or demyelination."
.....
"Slight prominence to the extra axial space is noted adjacent to the frontal lobes bilaterally compatible with volume loss in conjunction with borderline bilateral frontal atrophy. Differential diagnosis would include CSF pooling. There is no evidence of asymmetric parietal or temporal atrophy."

It later makes mention of decreased CSF flow both in an out of my brain. I have been doing atlas orthogonal for this but haven't seen any results from it. I guess I shouldn't be surprised about the vasculitis- thats likely been there for a while but the possible brain atrophy concerns me. My brain has been impacted bad for many years now and I often fear im wading into some of this becoming permenant territory. My doc still says this is a bad case of dysautonomia but all of our treatments so far have failed to provide any changes

dont be alarmed , most with borrelia will have mri 's like this ...mine read word for word the same . remember alan macdonald found borrelia in 9 of 10 Alz brains . i haven't retested since iv abx and bvt but the pressure seem all but gone and word finding and memory is working again. circulation p and allicin got more flow to the brain dr k uses bv cream on neck for ccsvi or something...

My PET MRI noted several white hyperintensities, front temporal caloric changes and significant hippocampal volume loss.

A lot of different problems can cause these changes. An infection commonly does it, but they’re also seen in autoimmune diseases like Sjogrens, celiacs, etc

Dr Youngers book The Autoimmune Brain is a good read. Have you ruled out celiacs?

Good news is the brain is extremely neuroplastic, if you can stop the insult you can recover

WalkingbyFaith said...
The difference here is Aerose has already had extensive abx and herbal treatment since the prior MRI, I believe.

I can understand the alarm. It seems to indicate their may be ongoing damage occurring, and he still doesn’t know why or how to stop it or reverse it.

Am I understanding correctly?
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You might want to post this on the paradigm change ME forum. Those guys will likely know more than us.

Yes, Walking, this is accurate. I treated with heavy antibiotics for 3 yrs and several yrs of Buhner's protocol. None gave any improvement.

dcd2103 said...

Aerose91 said...

dcd2103 said...
My PET MRI noted several white hyperintensities, front temporal caloric changes and significant hippocampal volume loss.

A lot of different problems can cause these changes. An infection commonly does it, but they’re also seen in autoimmune diseases like Sjogrens, celiacs, etc

Dr Youngers book The Autoimmune Brain is a good read. Have you ruled out celiacs?

Good news is the brain is extremely neuroplastic, if you can stop the insult you can recover

Yah I can rule out celiac. Ive always tested negative for the antibodies and haven't eaten gluten in at least 10 yrs anyway. I sometimes wonder if I do have autoimmune encephalitis, though.

Oh there’s some form of encephalopathy/brain inflammation going on for sure. You’ve got both symptoms and mri changes.

Wish you could try IVIG. Although it isn’t the miracle cure for me, it is for a lot of people

Me too. My current doc sent a recommendation for me to see an immunologist in hopes I can get IVIG. He gave me a pneumonia vaccine first and took blood before and after to show that my immune response is too low. Hoping that will work

My SPECT scan shows tons of hypoperfusion as well. There's been something knarly going on for a long time and somehow after 10 years and 34 doctors I still have no idea what it is