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Posted 11/23/2020 9:36 AM (GMT -7)
I was going to make an appt. With Dr. T.M. berlin,ct bt way too pricey compare to other llmds. I want someone who knows the co infections as well as lyme. I heard if an llmd sends u to get blood testing done or labs that your insurance can pay for that part and that part wouldn't be out of pocket like the actual office visits . Anyone heard of that or experience this with llmd testing or did anyone pay out of pocket for testing bloodwork?

Post Edited (MedicalNerd) : 11/26/2020 8:48:00 AM (GMT-7)

Posted 11/23/2020 10:01 AM (GMT -7)
Testing can be covered by insurance if it's from a lab that works with insurance companies, e.g. Quest or LabCorp, but these are not always considered the most reliable depending on the test. Specialty labs often are not covered by insurance, like Galaxy, IGeneX, etc. I have had my insurance cover a small portion of some labs' tests, such as Genova Diagnostics. Another option is to pay out-of-pocket for specialty lab tests and submit them to your insurance company, and see if they will pay for some of it. My LLMD's office told me that Medicare will pay for food sensitivities testing and some other functional medicine tests that most other insurance companies won't, which surprised me. In my experience, LLMDs know which tests will be out-of-pocket costs, and they will work with you about which ones you are comfortable paying for. That said, they all have strong opinions about which tests are reliable and useful, so some may pout a little if you refuse one of their favorites!
Posted 11/23/2020 10:13 AM (GMT -7)
Medicalnerd,

I think you mentioned possible mold in your situation. I would look for a doctor who is skilled in all of it - Lyme, coinfections, mold, etc. Not all LLMD’s treat or even consider mold toxicity.
Posted 11/23/2020 10:53 AM (GMT -7)
Another thought: medical expenses can be tax-deductible, so you might get back some or all of the money you spend on out-of-pocket tests. I think if you spend 7.5% of your income or more on medical expenses, then it's deductible.
Posted 11/23/2020 11:08 AM (GMT -7)
Why not make an appointment w Dr K after my glowing review?
Posted 11/25/2020 7:32 PM (GMT -7)

WalkingbyFaith said...
Medicalnerd,

I think you mentioned possible mold in your situation. I would look for a doctor who is skilled in all of it - Lyme, coinfections, mold, etc. Not all LLMD’s treat or even consider mold toxicity.

thanks so do I know of any llmds that are skilled with mold in CT area? I don't mind traveling a little either as long as I find a good.doc
Posted 11/25/2020 7:34 PM (GMT -7)

dcd2103 said...
Why not make an appointment w Dr K after my glowing review?

hi I tried googling a doctor k trust me! Not sure which one is the right doc k send me a little.more info??
Posted 11/25/2020 7:42 PM (GMT -7)
Dr Katz. Sorry man rules of the board to use initials but I don’t think he cares has done articles about this stuff
Posted 11/25/2020 8:26 PM (GMT -7)
There’s a experienced LLMD in Wilton CT

Initials are SP
Posted 11/26/2020 6:18 AM (GMT -7)

Girlie said...
There’s a experienced LLMD in Wilton CT

Initials are SP

True girlie but I feel that this dr will not be able to help him w EDS or possible lupus. I’ve talked to a couple people who have been to him w no success. The criticism is that everything is lyme and everything is more antibiotics indiscriminately. I get the sense that this is probably accurate based on his lectures I’ve watched.

Given that medical nerd was trying to tease out what is his EDS, what is his lyme, and is there a connective tissue disease, SP sounds like the wrong choice imho
Posted 11/26/2020 8:24 AM (GMT -7)

dcd2103 said...
Dr Katz. Sorry man rules of the board to use initials but I don’t think he cares has done articles about this stuff

no problem yea I know board of rules so we aren't suppose to write names bt this has been a great help thanks so much.
Posted 11/26/2020 8:27 AM (GMT -7)

dcd2103 said...
Dr Katz. Sorry man rules of the board to use initials but I don’t think he cares has done articles about this stuff

hey dr.k is a rheumatologist correct? Was confused on google it says he's a neurologist lol it does say orange ct boston post road though
Posted 11/26/2020 8:29 AM (GMT -7)
He’s a neurologist but also a very skilled LLMD and he understands the immune system better than any dr I’ve been to. He will be much better than a classic rheumatologist at figuring out if you have a connective tissue disease or just an infection, I think. As was pointed out rheumatologists will just tell you lyme doesn’t exist and if you don’t fit the classic pattern or exact bloodwork of a specific rheumatic disease, they won’t help you. Dr K should be able to help you figure out what’s going on, he’s very sharp

Post Edited (dcd2103) : 11/26/2020 8:37:54 AM (GMT-7)

Posted 11/26/2020 8:32 AM (GMT -7)

Girlie said...
There’s a experienced LLMD in Wilton CT

Initials are SP

thanks very much I know I have eds bt there's no way in hell that I HV been bitten by a tick several times with all lyme/relapsing fever symptoms with no lyme. Like I must HV lyme. Also when I got bit up by a bunch of fleas I just hv gotten bart we used to HV cats and dogs growing up and I never knew wt bart was until I experienced symptoms. I just want a doc that will consider symptoms and not just base it off of blood work you know?
Posted 11/26/2020 8:39 AM (GMT -7)
I hope nobody ever goes to Dr. Initials RL in old lyme ct. He was the biggest egotistical moron I've ever had the misfortune to be treated by. He did however diagnosed me with some type of ehlers-danlos syndrome I think vascular I don't remember and some mild for of marfan syndrome. However when it came to lyme despite my pos then neg test he said there's no way I could possibly hv it yet my test was pos at one point and I had never been treated. Last time I checked your knees don't have to be swollen and visible and having late stage lyme is the only form of it as he said I looked to young and healthy. He completely brushed off my symptom's even though I have a history or numerous tick bites and symptoms. He didn't even consider bart or Babs and was so uneducated he tested me only for 1 strain of bart and says not possible I have it. Also tested for Babs when everyone knows Babs hides in red blood cells and also can't be caught on blood test only.in the beginning of being infected after that we are like 80% chance of being screwed unless we find a doc who will go on symptoms and tick bite history rather than just a blood test .this is why I self treat I guess it saved my life just like these forums did. If some of these rheumis brag about knowing about lyme and co infections they should hv enough common sense to test for more than 1 strain and treat based upon history and symptoms is all I'm trying to get at
Posted 11/26/2020 8:46 AM (GMT -7)

dcd2103 said...
He’s a neurologist but also a very skilled LLMD and he understands the immune system better than any dr I’ve been to. He will be much better than a classic rheumatologist at figuring out if you have a connective tissue disease or just an infection, I think. As was pointed out rheumatologists will just tell you lyme doesn’t exist and if you don’t fit the classic pattern or exact bloodwork of a specific rheumatic disease, they won’t help you. Dr K should be able to help you figure out what’s going on, he’s very sharp

yes very true I know that all too well how the rheumis work . I hvnt seen my original neurologist in over a year because I was getting lots of seizures before. Do u think I would need a referral to this nuero we'll probably obviously. And do u know if they take medicaid or medicare? This is the worst part when u can't find a decent doc do to the type of insurance u have it's pure hell.
Posted 11/26/2020 8:49 AM (GMT -7)
Ah unfortunately he doesn’t take insurance!! Ugh I’m sorry sad
Posted 11/26/2020 9:18 AM (GMT -7)
MedicalNerd, if you are willing to drive to Boston, then I know a few Boston-area functional medicine LLMDs who take insurance and have experience with tick-borne infections, mold, autoimmune disease, etc. I've seen folks in Western Mass, too, but honestly they've been deeply unimpressive so far.
Posted 11/26/2020 10:42 AM (GMT -7)

dcd2103 said...
Ah unfortunately he doesn’t take insurance!! Ugh I’m sorry sad

it's ok I just appreciate all the great information and the help
Posted 11/26/2020 5:56 PM (GMT -7)
“ True girlie but I feel that this dr will not be able to help him w EDS or possible lupus. I’ve talked to a couple people who have been to him w no success. The criticism is that everything is lyme and everything is more antibiotics indiscriminately.“



Well I would start with treating the infections as many people that have lyme/bart etc have some symptoms that could be under the autoimmune umbrella.

For instance I was sent to a Neurologist to have MS, Parkinson’s and ALS ruled out. My symptoms of tremors, buzzing, burning, weakness, cognitive , loss of muscle , etc etc lined up with autoimmune diseases.

Treating for lyme and CO’s has eliminated the majority of the symptoms.

I’m glad I wasn’t diagnosed with autoimmune and treated with immune suppressing drugs.

If lyme and CO’s has been diagnosed - then they need to be treated anyway..,right?
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