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Dysautonomia

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Lyme Disease
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MedicalNerd
Veteran Member
Joined : Jun 2019
Posts : 530
Posted 1/11/2021 9:35 AM (GMT -7)
So basically I put the big picture together from my random pots low blood pressure weight loss, fast heart rate this is was it is. Anyone else have this as I've heard we can develope this from infections? Are there any herbs to help rebuild nerve damage or cells in the brain because it effects the nerves when they're damaged from infection
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saraeli
Forum Moderator
Joined : Jan 2019
Posts : 2430
Posted 1/11/2021 10:59 AM (GMT -7)
Lots of us have dysautonomia.

For me the chief symptoms have ben POTS and gastroparesis. I have seen some dysautonomia specialists, some of whom said meds help as well as placebos, and some of whom only offered meds. The ones who thought outside of the pharma box advocated plenty of salt, proper hydration (not too much!), compression stockings, circulation exercises, vagus nerve stimulation exercises, and practices that reduce stress (tapping, limbic system retraining, meditation, yoga, etc.). Reducing stress is important because stress dysregulates the nervous system and helps to cement these improper neuronal activities. Continuing to move one's body, especially with a safe practice that can be done reclining such as restorative yoga, is important to avoid deconditioning. (I learned that the hard way!) Craniosacral therapy can be very helpful as well.

If you do not have MCAS, then lion's mane mushroom is a good supplement for rebuilding the nervous system. Some find magnesium threonate helpful for brain function, but I did not notice a difference relative to other forms of magnesium. Another option to reduce stress on the nervous system is the amino acid L-theanine.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44374
Posted 1/11/2021 10:31 PM (GMT -7)
I also had POTS from lyme.

I can tell you that it has resolved with treating the infections.
My heart rate would rise when I stood up.
If I did that several times in a row, I would sometimes get winded.

about a year or so ago, I had an improvement - my heart rate would only rise to 95-100 bpm. (Previously it would be 130-135)

Now when I stand up - heart rate is in the 80’s....

So YES - it can get better with treatment!
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