Posted 1/12/2021 2:43 AM (GMT -7)
I was reading an exchange between DCD and The Dude and it made me think that this is one thing that might help people draw some conclusions. I know some of us respond well to certain treatments while others don't. My hope is to find similar patterns between symptoms and what treatment seems to work. I'm also really curious what the symptoms "feel" like to everyone as sometimes i feel like my symptoms just don't make any sense and surely no one can feel like this.
So maybe we can all share, if it helps we can follow the following template:
Symptoms onset: 7 years ago
Diagnosis: Diagnosed with Lyme in 2018 (Feb), with Mold ilness 2019 (Jan)
Treatments: Multi antibiotic regimen for 8 months, no noticeable change
Natural anti mycotoxin protocol for mold, no noticeable change
Too many supplements and tinctures to mention, but none but teasel root with any noticeable affect(positive or negative)
Meditation and deep breathing for anxiety. This is the only thing that has seemed to help a bit, it tends to lower the amount of pain i have
Main symptoms: Body wide non stop twitching, dizziness, dysautonomia, chest pain and other pain
How it feels: My symptoms are all over the map, sometimes i can have burning or hypersensitivity for a few minutes or on and off for a few days, then it could disappear for months, or be back 2 days later. All of my symptoms besides twitching is like this, everything comes and goes without rhyme or reason. My twitching is always there, but it can "ramp up" in the same way, although when it does it tends to stay a lot longer, like weeks or months. My twitching is also basically split into 3 groups. Classic twitching of one muscle group for minutes, ours or days. "Crawling feeling" in a body part or all over the body, i can see the muscles under my skin crawl, almost like electricity moving through. Or finally "jerks" where it hops uncontrollably once or twice and then moves to a different body part.