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Lyme induced dysarthria, pulsing vs continuous therapy

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Lyme Disease
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AnneSommers
New Member
Joined : Jan 2021
Posts : 4
Posted 1/15/2021 1:44 PM (GMT -7)
Hi everyone smile I just got registered to this forum. Has anyone had any experience with Lyme dysarthria? Did you make a successful recovery? What was your treatment and therapy? How did the progression go?

Are you more a proponent of pulsing antibiotics or a continuous therapy? And finally what are the best suplements and biofilms or does it depend on the choice of antibiotics?
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saraeli
Forum Moderator
Joined : Jan 2019
Posts : 2404
Posted 1/15/2021 2:03 PM (GMT -7)
Welcome to to forum, AnneSommers! I'm sorry that you are dealing with this, but there are many experienced members here who can share their experiences and advice.

Several members talk about slurred speech, facial paralysis, and difficulty pronouncing words, but I'm not sure if everyone knows the term "dysarthria," so just to make sure that people know what you mean, here's Mayo Clinic's definition:

"Dysarthria occurs when the muscles you use for speech are weak or you have difficulty controlling them. Dysarthria often causes slurred or slow speech that can be difficult to understand. Common causes of dysarthria include nervous system disorders and conditions that cause facial paralysis or tongue or throat muscle weakness. Treating the underlying cause of your dysarthria may improve your speech. You may also need speech therapy."

Because of the etymological roots, I remember when I first saw the term, I thought it meant joint dysfunction, so I wanted to make sure you didn't end up with a bunch of replies about joint issues, in case people make the same mistake I did. smile

I have not had this symptom, but I have had many other debilitating neurological symptoms from Lyme. They do usually resolve with treatment! Do you have an LLMD that you are working with on a treatment plan?
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AnneSommers
New Member
Joined : Jan 2021
Posts : 4
Posted 1/15/2021 2:42 PM (GMT -7)
Thank you for the welcome smile Yes, I have been working with my LLMD since mid September 2020 but little to almost no progress has been achieved sad This has made me wary and uncertain about her choice of therapy. Despite diagnosing me with chronic Lyme disease she prescribed me oral doxycycline which as far as I know is mostly used for treating acute form. Since mid November I’ve been on IV ceftriaxone (rocephin). She’s a proponent of pulsing antibiotics while I feel that these breaks aren’t helping at all. Any slight progress achieved is constantly nullified.

I have already posted on Reddit explaining my case. I should probably copy my post here so other posters are more familiar with my situation. Long story short; it’s been really hard not being able to talk to other people and being forced to hide and avoid any meetings. Online classes have been a life savior.

As far as my speech’s concerned it’s accompanied with slurring, difficulty pronouncing words, a heavy and numb tongue etc. I have other symptoms as well (muscle and joint pain, chronic fatigue, headaches, ear and TMJ pain, eye floaters) but this is obviously the most debilitating one.
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Girlie
Forum Moderator
Joined : May 2014
Posts : 44341
Posted 1/15/2021 5:21 PM (GMT -7)
Hi Anne - welcome to the forum!

“ Yes, I have been working with my LLMD since mid September 2020 but little to almost no progress has been achieved sad This has made me wary and uncertain about her choice of therapy. Despite diagnosing me with chronic Lyme disease she prescribed me oral doxycycline which as far as I know is mostly used for treating acute form. Since mid November I’ve been on IV ceftriaxone (rocephin). She’s a proponent of pulsing antibiotics while I feel that these breaks aren’t helping at all. Any slight progress achieved is constantly nullified. “

Doxycycline is prescribed for chronic Lyme disease by some llmd’s - but generally the consensus is two (or more) antibiotics should be taken at the same time. Monotherapy is fine for acute Lyme disease - ie when caught early. But not for chronic cases.

My LLMD is very experienced and very knowledgeable and he prescribes antibiotics on a pulsed protocol.
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