At least you are a little better. Anything is better then nothing!!
I’m worried too about the anemia. But I’m not taking a high dose of dapsone yet. I’m also worried about the gut. That’s the reason I never wanted to take antibiotics.
I’m taking methyl folate 10 mg.
This is what I take also:
Oil of oregano
Vit c 2000 mg
Vit d 4000 iu
Did you have any of my neuro systems that I listed?
Do you have any positive testing for Lyme and co infections?
What are the supplements you are taking? Exactly what’s on dr Horowitz’s protocol? So you see Dr Horowitz?
Hmmm....I have a different take on the gut. It's a potential issue on antibiotics, but for myself, consistent probiotic use has mitigated the issues. I've been off and on antibiotics for 5 years now. Unfortunately, antibiotic therapy in itself hasn't been enough for me, but it has helped some. The potential issues from abx use hasn't outweighed my real life issues from Lyme thus far.
Yes, I have experienced all those neuro issues that you describe. Internal tremors, vision being off, loud noises or too much stimulation in front of me intensifying symptoms, twitches all over body, inflammation in eyes, stabbing head pains. I have noticed since starting this protocol that the pain in my hip joints, and the sciatica like pain (pain in lower back that radiates down back of legs) have returned and with a vengeance.
I haven't performed a test in quite some time as they are super expensive and sometimes useless. The last test I took was ArminLab's Elispot which my Dr. believes is a good way to track treatment progress. That was the only test I ever took that definitely displayed positive for Lyme (Burgondofei (sp?) and Miyamoti). Previously, western blots had came back mixed but not CDC positive. Have tested positive for babesia in the past but that was several years ago. Have never had a Bart positive test, however, never have performed the gold standard in Galaxy. Out of all the co-infections I know I have EBV due to positive IGM/IGG tests going back years. I'm not sure how much of a role that plays in my illness. I'm also confident I have Bart due to my symptom profile and Bart rashes.
I do not see Dr. Horowitz. My doctor is an established LLMD and was willing to try this protocol. I am mostly following Dr. H's protocol to a T. The only changes are my doc wanted to add in tagamet and LDN, not taking mycelex troche, and I'll probably use NAC and Glutathione intuitively versus how Dr. H's prescribes it.