Hi WalkingbyFaith, Garzie and trkane!
Thank you all for the replies and sorry for the delay in responding back. Haven't been feeling so great.
they don't itch, thank God, I think that would drive me crazy! I'm sorry to hear about
the breakout of tiny bart scratches that scabbed over and I'm sorry you are maxed out in spending. These problems are so expensive aren't they?
Do you need an amazon gift card to buy them or anything? I could probably miss $20 or $30 this month 🙂. Sorry I wish I had more to give.
I know you had mentioned heat rashes before, at first I thought maybe that's what it was. However, you mentioned it didn't last, so I'm glad it's over! To be honest I'm still reading a lot about
MCAS. It's a difficult topic to fully understand as the symptoms are so broad.
Are you still taking serrapeptase? Might have been nattokinase sorry.
That's really interesting that you have the same reaction to treatment. The evenly spaces out dots, do you think that is somehow related to a certain part of the skin? Like for example pores or follicles?
Yes I agree it seems random of time and I also share your thoughts on how it's related to treatment. It's good to hear that they are eventually getting better, that's a real positive thing. Sometimes I am a bit worried about
the damage it's doing to my skin. I recently read a doctor say something along the lines of "Lyme is a skin disease first". I had never heard that before. What are your thoughts on that?
That's reassuring how they found it in syphilis patients and that it's ppart of the process. I agree it seems to go on for long periods.
I've also noticed that when taking Cholestyramine it got a lot worse. I'm not sure what conclusion to draw from that, if any.
I agree with what you're saying about
proteolytics/biofilm busters. I accidentally did it the other way around. Started with lumbrokinase at full dose without any antimicrobials and then add antimicrobials (in my case Bactrim). This was a mistake. I actually had to reduce Bactrim to half a pill because of it and have been miserable for the past days.
So yes, what you're saying has been my experience too. That it makes more sense to start with proteolytics/biofilm busters when stable first..
In general though, I think proteolytics/biofilm busters make a huge difference. I'm starting to become convinced that they are kind of a big part of missing things in people's treatments. I hope your expiriment with Bromelain goes well. It seems like you know your body well with backing off when it doesn't feel right.
"it may be better to just have the antimicrobials stable - even if that is a pulsed regime - and then modulate the proteolytic within the range you can tolerate."
Couldn't have said it better, I had to hear that and the following paragraph too:
"i guess the overall theory could best be described as trying to first mop up all the susceptible planktonic ( free floating) bacteria with anti-microbials and get the patient stable with herx like reactions from that subsiding or under control - then gradually add proteolytic - to gradually break down biofilms / fibrin to release more bacteria into the body - while continuing to dose the anti-microbials so that they can then also be killed. gradually working up the dosage of proteolytic to dissolve more and more biofim. but not at a rate that overwhelms the patient with herx."
Thank you Garzie
Very well put, it helps a lot, and I will keep you posted !!
trkane: Sorry I don't know a lot about
oxolates, thank you for bringing that to my attention. I will have to look into that.