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"One Deep Breath" Ted Talk on Lyme

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Posted 3/31/2021 11:03 AM (GMT -6)
https://youtu.be/k751t8_q0by

This helped me so much.

He talks about changing your mindset, and how it was "everything" that healed him.

He was a very active surfer, and was diagnosed with "MS" (huh), and really had Lyme.
Posted 4/2/2021 8:33 AM (GMT -6)
YES! YES YES YES!!! I swear I have been trying to find the words for this and having the same conversation for the last year. The "pattern" concept just articulated for me in the last week, and now... here it is!

It's not a particle. It's a PATTERN.

What gave me chronic Lyme was not the tick bite.
It was the pattern of my brain that interpreted and reacted to everything in the same way and refused to stop and adjust the whole picture.
Same pattern that gave me "hereditary" depression for 20 years.
Same pattern that destroyed my life with perfectionism.
Same pattern that distorted my religious views.
Same pattern that affected my relationships.
Same pattern that poisoned my nutrition and weight.

Guess what happens when you discover and fix the pattern? EVERYTHING HEALS! Every aspect of life that goes wrong is brought into harmony when you discover the pattern!

Thank you for posting!

See:
neuroplasticity
DNRS
Mind-body medicine
Caroline Leaf, Joe Dispenza, Annie Hopper, Caroline Myss

Study other problems in your life besides Lyme... sometimes if you see the pattern elsewhere you can apply it to Lyme and suddenly it all heals.
Posted 4/2/2021 8:34 AM (GMT -6)
Now I need to post again just so the number "666" doesn't appear under my name 😂. That's not a good "pattern" for anyone to associate with me!
Posted 4/2/2021 9:26 AM (GMT -6)
I totally agree have come to this conclusion myself. I think it’s all a form of “dysautonomia”. Limbic system controls the ANS which controls all the symptoms. You can attack it from the psychological/limbic side (changing outlook, DNRS) and/or the physiological/ANS side (deep breathing, cold showers, neurological retraining etc).

This is why I’m going to the Spero Clinic. Have heard it can be life-changing
Posted 4/2/2021 10:31 AM (GMT -6)
I'm sorry but I completely disagree. Just because most institutions have failed us, doesn't mean that we should throw out the entire concept of evidence based medicine.

There is no science to support theories that chronic Lyme Disease stems from a "mind body connection" or has anything to do with the limbic system.

If these approaches are working for someone, all power to them. But to suggest that patients can be cured with the power of positive thinking is offensive, and does us all a disservice.
Posted 4/2/2021 11:40 AM (GMT -6)
Completely disagree with you Adam. The current state of "Evidence based medicine" is a freaking joke, and has gotten us into this chronic illness quagmire that we are in today where people like us cant get help.

The whole idea is centered around the idea that you have an objective input and an output, and you can quantify each and therefore say something about it. And only this type of objective test can be considered science. What this completely misses is the health of the system. For example, if I have neuropathy I can take Cymbalta. The input, Cymbalta, and the output, its effect on the prior condition, can be measured. What this completely ignores is that this does nothing to measure or treat the underlying cause of disease. Absolutely zero. It also says nothing about the devastating effects these drugs have on the nervous system in the long run, only reported side effects for the duration of the short RCT. The gold standard of "evidence based medicine" is the Risk Controlled Trial, which is fraught with backwards interests. The only ones who can afford them are Big Pharma, so they determine the science. It's not designed for studying chronic illness either, only inputs and outputs.

The link between the mind and dysautonomia is real, and more and more research is starting to point that way. Plenty of people on here have made improvements with DNRS and similar modalities, and its offensive of you to suggest they're doing people a disservice by talking about that.

Go tell the dude w/ PTSD who develops severe neuropathy or IBS or POTS that his limbic system had nothing to do with it because there's no RCT proving the science, lol.

Post Edited (dcd2103) : 4/2/2021 12:32:48 PM (GMT-6)

Posted 4/2/2021 4:17 PM (GMT -6)
I have to agree with Adam B. I got curious and had to watch for myself - the guy mentions he had treatment with antibiotics, pretty extensively it sounds like, too. It's not fair to say mindset alone healed him. Even if he didn't heal from abx alone, or right away, he still received treatment to help arrest the disease. Someone untreated/undertreated infection(s) may continually decline or fail to improve for reasons completely unrelated to their "mindset." Sure, the right mindset can help to contribute to healing, but cannot be considered the end-all, be-all of healing from Lyme and Co.

Post Edited (1yrinVA) : 4/2/2021 4:26:03 PM (GMT-6)

Posted 4/3/2021 10:16 AM (GMT -6)
He never said it was his mind alone that healed him, but it is a HUGE component of healing. If you think you are going to be sick the rest of your life then you will never heal.

There are plenty of studies, books, and documentaries that show the power of the mind to heal all kinds of chronic disease.

I have to wonder why someone comes into a thread just to immediately post something negative and contrary.
Posted 4/3/2021 11:31 AM (GMT -6)
I am sorry, I didn't mean to be negative or contradictory. I understand and support the idea that believing in your own recovery helps facilitate getting there.

Just every once in awhile, when taken to logical extremes, the attitude can serve to blame people for "choosing to stay sick" when they are in reality trying everything to get better. I've had traditional doctors and well-meaning family and friends suggest (usually kindly and gently) many times that my symptoms are all in my head and if I stopped thinking about them they'd go away. Easy for them to say, but when I tried that, all of the positive attitude in the world couldn't stop things from getting worse and worse. The only thing that's helped was to find a treatment plan and stick to it. So the "mind over matter" attitude kind of hits a sore spot for me.
Posted 4/3/2021 11:38 AM (GMT -6)
When I disagree with a viewpoint being discussed, I like to pop into a thread and say something so that other members / viewers of this forum can see that not everyone here believes in the same groupthink.

Personally, I am inclined toward hard science and finding answers for why so many people including myself continue to suffer from what we collectively have labeled "Chronic Lyme Disease."

There don't seem to be many other forums where other people are interested in the same. So I keep tabs on these forums, where sometimes (unfortunately and more rarely...) we will have a good discussion or two.
Posted 4/4/2021 10:33 AM (GMT -6)
Interesting pod-cast on positive thinking from the woman who founded the Spero Clinic (second half mark whites story specifically).

https://podcasts.google.com/feed/ahr0chm6ly9mzwvkcy5jyxb0axzhdguuzm0vag9wzs1mb3ity2hyb25pyy1wywlulw/episode/ndvhmzfhy2etnzuyzc00njrmltkyodytmde5nzcwowu0njnj?sa=x&ved=0cacquieeahckewiwgtghkbjvahuaaaaahqaaaaaqaq

I think this place is my best shot. My autonomics are fried. These guys focus on autonomic retraining not as much by attacking it from the limbic side w/ positive thinking, although you can see they think thats important from the podcast, but from the physiological side through neuro-electrical autonomic retraining.

Coincidentally, I was telling a friend about Spero and she said that their family friends were in town recently w/ their two kids. The mom and the daughter both have lyme and just got back from Spero Clinic, and said it was life-changing. She's thinking of going now too! It's no coincidence they have an 8 month waitlist.

I've also come to recognize that this is why the microbiome goes. We've argued in this group before about how lyme changes the microbiome. That's it right there. The ANS literally controls the gut. Once the vagus nerve goes, the gut goes. And lyme affects the ANS. This is the link which explains everything, imho. The same footprint repeats itself from one neurological disease to another.

Wrt to "science" fixing chronic lyme disease, and my position being anti-science, which wasnt stated explicitly, but implied....I have an Ms in Computer Engineering, and am highly numerate. And w/ numeracy comes logic. And I think it is not logical, and therefore anti-science, to assume a pill or a supplement is going to fix "chronic" lyme. I've come to this conclusion after trying treatment after treatment after treatment, where I'm promised "this will fix it" time and again, only to have the same result. Its the same story every time. The treatment, usually a drug or supplement regimen, pulls one lever down, but several others up. And does nothing to get to the root cause of the problem. Chronic illness is caused by a breakdown in homeostasis, of a machine with trillions and trillions of variables. It's a disease of the modern world which no pill can fix, and that's why "science" continues to fail.

Post Edited (dcd2103) : 4/4/2021 11:07:01 AM (GMT-6)

Posted 4/4/2021 12:17 PM (GMT -6)
This seems appropriate:

"It ain't what you don't know that gets you into trouble.
It's what you know for sure that just ain't so."
~ Anonymous
Posted 4/8/2021 8:41 AM (GMT -6)
There are two ways to view the same idea: as blaming the victim for their disease/condition – which is indeed offensive; or empowering a victim to take control of a situation that was forced upon them outside of their control – which is the best news a person can receive. The problem is, those two opposite perspectives come from the same message: your body can and must be your own healer. Don’t shoot the messenger. Consider which message you CHOOSE to receive.

If “Science” hasn’t worked for someone, and still, after 50 years, doesn’t know how to cure chronic Lyme, wouldn’t that imply that we need to open our eyes to something “Science” isn’t considering? Isn’t the definition of insanity doing the same thing over and over and expecting different results?

Don’t see this as a black or white issue: Science or innate healing. Understand that it’s BOTH. You’re not being asked to choose a side, you’re being asked to embrace BOTH. That is the power: two together.

When we get a disease or injury, what do we do? We see a doctor, we ask for the medicine, we get the surgery. We immediately, as we are taught, look for all the things outside of ourselves. We’re desperately looking for the cure OUTSIDE because we believe its the INSIDE that’s diseased. But from the tiniest papercut to the biggest virus, WHAT IS HEALING US? It is, and always has been, OUR OWN IMMUNE SYSTEM. It’s INSIDE us! People have healed injuries and diseases for thousands of years without anything we have at our disposal today. How is that possible? Because they had immune systems! Healing is, always has been, always must come from, INSIDE OF US. Because that’s the very SCIENTIFIC DEFINITION of a body and an immune system!

This is NOT saying ALL we need is inside, that you can heal with mind alone (though some do!) This is the problem - our inside isn’t strong enough or is too dysfunctional to do the healing by itself. So we do need “Science” or medicine or systems outside of ourselves to AID in healing.

But the critical point is that we’ve totally lost sight of what is happening: the medication and the procedure is NOT what heals us! Things that kill the pathogen are NOT what heal us! What heals us is our OWN IMMUNE SYSTEM, and what we’re clamoring after should be things that SUPPORT OUR IMMUNE SYSTEM, teach it how to work again, and do not interfere with its original purpose. Sometimes we need the help of pathogen-killers. But that should be to the purpose of helping the immune system fight them. Too often we get to the point where the medication kills EVERYTHING, including our immune system. Then our “science” becomes detrimental.

Keep the focus INSIDE and what your own body can do. The best doctor is the one who teaches you how to not need a doctor. My doctor’s job is to never have to see me again. Not because I can go buy my own pills online, but because my own body and mind have been taught how to manage its own immune system!

Thoughts and mental patterns matter. They - through hormones, the nervous system, the limbic system, whatever – are PART of our immune system! They are what BUILDS our immune system, our entire life, just as much as what we ate, what germs we were exposed to, and what medications we took. That cannot be ignored, or the body will never heal.

Healing comes from the immune system. If you ignore part of the immune system – the mind – can you ever really heal? Or will you relapse until you've learned to address it? It will not be ignored. That's the pattern. Your life will tell you the same things over and over until you stop running and LISTEN. If you're hearing the same story over and over... you didn't get the message yet.

Thousands of people are flocking to this forum desperate for answers. When someone says they are in remission or cured, they are overwhelmed with messages asking What did you do?!?! How do I do it?!?!?! And when that person says, “You have to take control of your healing and your mind,” instead of thanking them for their help, they get attacked for being offensive…

Think about that. Crucifying your own savior. Mind blown.

All the way out in Oz, Dorothy finds she had the power to go home all along. What do we conclude, that the stupid b***h shoulda just clicked her heels in the first place? No. She met people along the way and learned deep secrets. It wasn’t about HER getting HOME, it was about the journey, and it was about ALL of them, each finding what they sought. Some of us are Dorothy needing home. Some of us are Scarecrow needing a brain. Some of us are Tinman needing a heart. Some of us are Lion needing courage. Just because Dorothy tells you the Yellow Brick Road leads to Home, don’t attack her because you’re still looking for your brain, heart, or courage. GO WITH HER! Healing is for everyone!
Posted 4/8/2021 8:46 AM (GMT -6)

BabsBunny said...
There are two ways to view the same idea: as blaming the victim for their disease/condition – which is indeed offensive; or empowering a victim to take control of a situation that was forced upon them outside of their control – which is the best news a person can receive. The problem is, those two opposite perspectives come from the same message: your body can and must be your own healer. Don’t shoot the messenger. Consider which message you CHOOSE to receive.

If “Science” hasn’t worked for someone, and still, after 50 years, doesn’t know how to cure chronic Lyme, wouldn’t that imply that we need to open our eyes to something “Science” isn’t considering? Isn’t the definition of insanity doing the same thing over and over and expecting different results?

Don’t see this as a black or white issue: Science or innate healing. Understand that it’s BOTH. You’re not being asked to choose a side, you’re being asked to embrace BOTH. That is the power: two together.

When we get a disease or injury, what do we do? We see a doctor, we ask for the medicine, we get the surgery. We immediately, as we are taught, look for all the things outside of ourselves. We’re desperately looking for the cure OUTSIDE because we believe its the INSIDE that’s diseased. But from the tiniest papercut to the biggest virus, WHAT IS HEALING US? It is, and always has been, OUR OWN IMMUNE SYSTEM. It’s INSIDE us! People have healed injuries and diseases for thousands of years without anything we have at our disposal today. How is that possible? Because they had immune systems! Healing is, always has been, always must come from, INSIDE OF US. Because that’s the very SCIENTIFIC DEFINITION of a body and an immune system!

This is NOT saying ALL we need is inside, that you can heal with mind alone (though some do!) This is the problem - our inside isn’t strong enough or is too dysfunctional to do the healing by itself. So we do need “Science” or medicine or systems outside of ourselves to AID in healing.

But the critical point is that we’ve totally lost sight of what is happening: the medication and the procedure is NOT what heals us! Things that kill the pathogen are NOT what heal us! What heals us is our OWN IMMUNE SYSTEM, and what we’re clamoring after should be things that SUPPORT OUR IMMUNE SYSTEM, teach it how to work again, and do not interfere with its original purpose. Sometimes we need the help of pathogen-killers. But that should be to the purpose of helping the immune system fight them. Too often we get to the point where the medication kills EVERYTHING, including our immune system. Then our “science” becomes detrimental.

Keep the focus INSIDE and what your own body can do. The best doctor is the one who teaches you how to not need a doctor. My doctor’s job is to never have to see me again. Not because I can go buy my own pills online, but because my own body and mind have been taught how to manage its own immune system!

Thoughts and mental patterns matter. They - through hormones, the nervous system, the limbic system, whatever – are PART of our immune system! They are what BUILDS our immune system, our entire life, just as much as what we ate, what germs we were exposed to, and what medications we took. That cannot be ignored, or the body will never heal.

Healing comes from the immune system. If you ignore part of the immune system – the mind – can you ever really heal? Or will you relapse until you've learned to address it? It will not be ignored. That's the pattern. Your life will tell you the same things over and over until you stop running and LISTEN. If you're hearing the same story over and over... you didn't get the message yet.

Thousands of people are flocking to this forum desperate for answers. When someone says they are in remission or cured, they are overwhelmed with messages asking What did you do?!?! How do I do it?!?!?! And when that person says, “You have to take control of your healing and your mind,” instead of thanking them for their help, they get attacked for being offensive…

Think about that. Crucifying your own savior. Mind blown.

All the way out in Oz, Dorothy finds she had the power to go home all along. What do we conclude, that the stupid b***h shoulda just clicked her heels in the first place? No. She met people along the way and learned deep secrets. It wasn’t about HER getting HOME, it was about the journey, and it was about ALL of them, each finding what they sought. Some of us are Dorothy needing home. Some of us are Scarecrow needing a brain. Some of us are Tinman needing a heart. Some of us are Lion needing courage. Just because Dorothy tells you the Yellow Brick Road leads to Home, don’t attack her because you’re still looking for your brain, heart, or courage. GO WITH HER! Healing is for everyone!

Very well said!
Posted 4/8/2021 8:52 AM (GMT -6)
The immune system is INSIDE. Which means you have to monitor EVERYTHING you put INSIDE to keep your immune system healthy: FOOD goes inside and affects your immune system. COSMETICS and TOILETRIES go inside and affect your immune system. MEDICATION goes inside and affects your immune system. ENVIRONMENTAL POLLUTANTS go inside and affect your immune system. MOVEMENT moves the inside and affects the immune system. THOUGHTS, FEARS, WORRIES, AND PERCEPTIONS go inside and affect your immune system.

Every action, visible or invisible, tangible or thought, directly affects your immune system. If you're still sick... what is stopping the immune system? Autoimmune? "Heredity"? Well then change what you've done and thought all your life! Find your PATTERN and see where it led to disease. Then CHANGE IT! People have cured autoimmune diseases this way! Again, not blame, but empowerment.

Permanent damage or circumstance that cannot be changed? Then your mind is even MORE important. It's all you've got. Embrace its power. Managing what you put INTO it is THE most important thing you can do with your life.
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