My daughter has Lyme and her vision issues may be what upset me the most. She can’t read or drive and lately her vision just grays out for a few seconds every few minutes. She is on treatment for Lyme and Bartonella but can’t seem to go up on dosage much due to horrible herxing.
We did try Stephania in the beginning but I didn’t know any better and she herxed too badly so we quit. I may go back and try that again.
As far as protection, idk, Blakeley takes biotin, collagen support, vitamin e, and just continues to treat. She dies take zinc and a zillion other things it seems. We are praying that is enough to one day see her normal vision return. So I am also interested in any thing anyone can share about vision issues.
I'm so sorry to read this, my heart goes out to your daughter and you. No one deserves to go through this.
Does your daughter have MCAS? I suffer from it myself as many others on here seem to as well and it looks like it makes many tolerate the Buhner protocol less good and herx worse, especially from tinctures made with alcohol as they have more histamine. I'll try tinctures made with glycerin next time myself. Anyhow, I also read serrapeptase is supposed to help with MCAS as well as medical cannabis, but I gotta read into that first. I don't know if that's what your daughter is dealing with of course, but maybe it's why she can't tolerate going up in dosage like me, so maybe it's worth to consider looking into that. This site might be of interest to you too https://www.treatlyme.net/guide/cytokines especially step 3 for severe situations like herxing, the glutathione IV or glutathione by nebulizer, something I'll definitely give a try myself. There's more useful informations on that website, so I hope it's useful to you. And I hope your daughter will be able to tolerate stephania if you re-introduce it and it will help her heal! All the best to you and her.