running wild said...
boreliob - It's not so much that I'm indifferent to doctors like that. It's just I've learned you can't beat ignorance anywhere in life, so I use doctors who have no clue about Lyme to get other questions answered, monitor kidneys and blood counts with blood tests, etc... I'm in total agreement about how frustrating it is. But with insurance covering a nephrologist to monitor kidneys, cardiologist to monitor heart and others to clear other possible problems, they become a necessary item.
So Bart is what kicks up with you when you aren't symptom free?
I have a similar approach to utilizing doctors for what they can do, and optimizing ad hoc; I have been able to get Doxycycline without a problem from most Dermatologists, for instance. Blood Pressure meds, no problm. Have a sleep apnea machine Rx'd, got it. MedicalMJ for PTSD and more...I like to look at the positive side. Adding to this on my "no more complaining" approach, I also got Cholestyramine via the "high cholesterol" route, knowing that it will clear out some baddies, was super-lucky to find a very smart and competent lady who (mostly) listened to me until I had the audacity to suggest that infections and concussions can very much cause psychiatric symptoms, and hey what do ya know it starts with three-B's (u all know Bart, Babs, Borreli) and EBV, CMV my nerves again---
it came down to me daring to have some "teaching moments" with them (there were several, maybe they were hoping I would cave from having a room full of interns hearing me, just to get ONE REQUISITION FORM to get the IGenex test--heaven forbid I get a Galaxy Bartonella test included well only if it's on my dime and not theirs it's okay... and yes I'm pretty now I'm "that guy"... always talks about
infections and concussions, Minocycline, THC is antibacterial AAAAND it all falls on deaf ears, or the sort of mind-bogglingly unfathomable incompetence one only finds (often, okay but not always) in Florida, sry I can confirm incompetence happens a lot.. I'm from here lol /end rant
So yeah the Bartonella, the nightmares are absolutely bonkers, and lately have been having these "phantosmias"
I keep having this one that smells like (sry for details here) diarrhea, vomit, sour milk, and rotting--(however I am in Florida so maybe COVID and very hot weather is killing many creatures, not just humans sorta like being in a war and kinda not wanting to know how much death is occurring :/. ) is the only way I can describe it, yes it is probably decaying animals from the hotter weather too. (!)
and funny how these olfactory symptoms (no smell/weird smell, taste/no taste etc) are getting more attention with COVID-19/delta variant symptoms/signs.
After some intense marijuana therapy, I experience a die-off (neuro-herx)and notice symptoms worsen then clear, like 1 steps back, two steps forward...
and well... NOT symptom free, still having some Babesia-like cold nightsweats, tender soles again, unrefreshing sleep
The "Brain On Fire" is very much what I'm feeling, there is no mistaking it. btw...you guys if you haven't seen that movie.. ^^^^^^ the sound work is SO REALISTIC, like extremely good high-definition sound.
maybe Bartonella increases chances of homelessness ten-fold or something I read before...just as schizophrenics are 10X as likely to have borreliosis/bartonellosis/toxoplasmosis...
But I digress... * sigh *
Well Bartonella is terrifying because it gives you zero fear and weirdly draws you towards your enemies instead of away from them!
Post Edited (borrelioburgdorferii) : 8/14/2021 6:50:23 PM (GMT-6)