Were you diagnosed under similar circumstances? With similar test results to mine?
Will an LLMD be able to make a diagnosis with the same test results? I assume they'd also have the same limitations around diagnosis as any other doctor for insurance purposes.
Aside from being more knowledgeable about lyme, what can an LLMD do that my specialist, who already thinks I have lyme, cannot?
i had a positive test for lyme from Armin Labs - using the Tickplex test.
UK GP's are told to disregard non NHS labs - and so do not acknowledge a lyme diagnosis - and instead offer no diagnosis and simply say that "the system has failed you - i suggest you look elsewhere" which is code for "we don't know what to do and so don't really want you on our books".
its not so much that a conventional ID doctor can't prescribe what a LLMD would
its a case that their belief system and training is at odds with what is now known about
the disease and so will not diagnose or prescribe or treat the way a LLMD will.
due to very well documented issues with the tests - false negatives are very common - and as a result all the guidelines say that negative tests cannot rule out infection. Despite this most conventional doctors will not treat without a totally clear positive test result - whereas LLMDs make clinical diagnosis using test results only as potential confirmation.
typically even if a conventional doctor does give a Lyme diagnosis - they will treat with a single antibiotic for a short period - which has been shown to be ineffective for a large proportion of lyme patients.
after this short course of abx - if you still have symptoms or relapse - they will call it post treatment lyme syndrome and not offer further anti-microbial treatment.
this is the typical path - there can be a few exceptions - but from my experience and many many others here - they are rare
i know there is a lot here to get your head around - which may be at odds with what you thought going into this - eg
-that doctors don't know much about
or are miseducated in what they are dealing with
-that the tests don't work well
i had the same difficulties - took me 4.5years and around 20 doctors to get a diagnosis despite asking if it could be lyme in the first 4 weeks and being scoffed at - so just trying to save you time and years of sickness.