I am brand new to this forum. I literally just signed up. I have been having unexplainable health problems since December 2020, but they got debilitating in April 2021. I am going to give a whole background on my story, and why I am coming to the thought that my problems could be a result of undiagnosed, late Lyme disease.
2015: I went to a state park with my friend. The next day, I noticed a small bullseye on my leg. It wasn't very red or anything, but I truly thought it looked like a bullseye. I immediately went to Urgent Care. They looked at me like a lunatic and did absolutely nothing and sent me home. Never got sick, never had any real issues. I completely forgot about it.
Fast forward to September 2020: I got COVID and it was a very mild case. Mainly just sore throat, body aches and lost smell/taste. Recovered fully in 2 weeks.
I randomly passed out in October 2020 and it was pretty scary. It took me a couple hours to get over it. I thought it was very strange, but I have passed out randomly before in my life so I never really questioned it.
December 2020: I found out I was pregnant, and the following day I miscarried. At the exact same time, I developed tinnitus. I thought that was very strange as there's really no correlation to tinnitus/miscarriage. I was only about 5 weeks along. My miscarriage was very severe. Tons of bleeding for about 2 weeks, severe cramps (I nearly went to the ER), chills, feeling faint, fever of 100.4. I went to my Gyno and she said some people get an infection and she put me on antibiotics. That was the end of it. I fully recovered in about 1 month (besides the tinnitus).
After my miscarriage, I noticed I would start getting what I call "pre-panic attacks". I would feel this insane adrenaline rush in my head and I would have to get up and walk around to shake it off. This started happening every couple weeks. It was very scary, but I just attributed it to stress and anxiety after the miscarriage.
April 2021: When all hell broke loose. I woke up on morning and out of nowhere, had the most terrifying panic attack of my life. That same "pre-panic attack" adrenaline feeling finally hit and I couldn't stop it anymore. It was so severe, I truly thought I was dying. I felt like I lost my mind. I was immediately derealized and dissociated. My HR was 150 and I was just pacing outside around my house to try to make this stop. It lasted for hours. I thought I was having a stroke. The next day, one side of my face went completely numb and that's when I made my mom take me to the ER. They did all the tests and said I had a panic attack and sent me home.
The best way I can describe this panic attack is like a bomb went off in my head. It really feels like something attacked my brain. I have never felt like this in my life before.
A few days later, my sister suggested I take a bentonite clay bath to try to detox whatever was inside me. I took a bath and probably used way too much clay (my fault). However, after only 10 minutes, I had to get out. I developed the most intense, severe, pounding headache and my heart was literally beating out of my chest. I then started violently vomiting and had to just go to sleep. I have never been so severely ill in my life. There is OBVIOUSLY something inside me that the clay was trying to draw out, and I pissed it off.
It felt like there was a blockage on the left side of my brain next to my eye. I am not sure how to best explain it, but it felt like I could not see out of my eye (even though I could). This intense "blockage" feeling lasted for a few months, but has since relaxed for the most part.
2 weeks later, I had a 2nd panic attack (also random and just happened to me), and developed visual snow, after images, blurry vision, etc. It just feels like my vision is severely damaged - like my eyes and my brain don't match up anymore.
I have been to more doctors than I can count and have had several tests. Everything comes back normal every time.
I have never felt the same since that panic attack. I am left with several debilitating symptoms that have reduced my quality of life to zero. To this day, these symptoms include:
-After images (positive/negative)
-Severe brain fog (cannot concentrate, cannot hold conversations, any thinking is basically impossible)
-Head pressure/daily headaches
-Severe fatigue (never feel rested no matter what - just feel like a zombie)
-Feels like my brain and eyes don't work anymore. So disoriented
-Feeling like I could pass out
-Just feeling like I am high/drunk 24/7 without consuming either of those
Everything is mainly neurological. I do not like to use this word, but I feel like I am mentally challenged now. I feel stupid.
My hypothesis is that the Lyme has been dormant in my body all these years. COVID and my miscarriage sent it into overdrive and awakened it. I believe it caused my miscarriage in the first place along with the tinnitus.
I just want to know if anyone has any similar experiences. I am trying to get in to see an LLMD. I truly do not believe this could be Long Covid because it's just way too extreme and everything happened very suddenly. I don't think Long Covid would feel like something literally poisoned your brain.
Please if anyone has any similar experiences, I'd really appreciate it. I am desperate and each day is getting harder and harder.
I’ve had many of your symptoms, almost every single one. I strongly believe this is Lyme. Many extreme situations can bring Lyme out. Having to get steroids, an extremely stressful situation messing with the immune system, Covid etc. so all of that makes me believe you are dealing with Lyme and CO and that your body is struggling with them taking over.
I would recommend seeking out an LLMD like you are already doing. The issue is I’ve been to several LLMDs and a lot of them are unqualified and don’t know what they are doing. If you have the time I would reach out to the Jemsek Clinic. They will stabilize you early on and help alot of your symptoms become more tolerable right off the bat. I don’t know your
location but if you are trying to stay local I’d do some research on the best LLMD around you which you could do in Lyme disease Groups on Facebook. Lots of personal reviews on there. Hope this helps