Posted 9/16/2021 1:42 AM (GMT -6)
I've started working with a new LLMD (an ACTUAL MD, now), Dr. S., at a Holistic Medicine clinic in South Carolina. And finally feel like I'm starting to make some headway. He's been ordering the right tests, etc. (which my last Lyme Practitioner was reluctant to do, because of not being an MD--and Medicare would most likely not cover any GOOD lab testing). Bloody shame, and of course the typical Lyme tests at LabCorp are relatively worthless, especially with Chronic, or long-term Lyme. So I spent 2 years on antibiotics, not really getting better and not sure of what the hell we were actually treating me for.
So, last month's IGeneX testing shows 3 out of 5 strains, positive, for Bartonella. This new MD I'm using has me on Azithromycin, Alinia, Low-dose Naltrexone, and Cryptolepis tincture. Along with Skullcap tincture & Quercetin that we use for minimizing the occasional Herxing.
The Alinia (500mg, twice a day) is proving unaffordable for me--it's a "Tier 5" Specialty medication, manufactured by Romark. The mail-order pharmacy (CarePoint) that many of my Lyme doc's patients use won't help me in keeping the copay low, because I've got a Medicare Advantage plan insurance, and not commercial insurance (like what's available if you're working for a GOOD, BIG employer). And the so-called "Patient Savings plan" that Romark brags about on their website is run through this CarePoint (mail-order) Pharmacy. ABSOLUTELY USELESS ROMARK "PATIENT SAVINGS PLAN," in my case.
$418. dollars for the brand-name (for a month's supply), and $382. dollars for the generic (Nitazoxanide). I just can't afford it, with all the other Lyme-treatment expenses, supplements, and herbs. I noticed that a forum member mentioned, a while ago, about using the "AllDayChemist" online Indian pharmacy. I looked up the generic on their website, and the monthly cost for the generic Alinia is $22.!!! The generic that I just paid $382. dollars for, at CVS. Gotta love this screwed-up American "healthcare" industry! And the generic that I just got screwed over, at CVS, is manufactured by a Pharmaceutical company in India. ANYONE have experience with sending a prescription to "All Day Chemist," in India? And if so. good results, or no?