In my experience, this disease causes anxiety through a physiological process. I had normal everyday Western person anxiety before Lyme, but I experience something along the lines what you are describing after many years of illness and treatment. I can feel it emanating within my body as a physical process. In return, when this physical process take over my thoughts the physical experience is intensified that much more greatly. I agree with others that have said this often comes along with trying different treatments and the body's reaction to those treatments. After several years of treating I am seemingly very sensitive to everything. Reading others' experience here leads me to believe I'm not alone in this issue. I agree with stopping or reducing the frequency/dose of whatever might be causing the herx/flare reaction.
From a mental perspective, I have found philosophy, particularly stoicism and certain teachings of Buddhism to be useful. For example, in Buddhism, there are teachings of not-self , and non-attachment. These concepts get pretty complicated, and I am by no means an expert, however, the crux of these concepts have helped me by learning not to feel attached to my thoughts, and to take it even a step further, not to be attached to physical sensations within my body. These thoughts aren't "me". They aren't "you". You or me didn't choose to think these thoughts. We didn't intend for these thoughts to have negative consequences. These thoughts and intentions simply arose, from somewhere, into consciousness. That's the mystery of consciousness. Of course, this is much easier said than done. I'm not going to pretend I'm walking around all enlighted and crap. However, I was reallllllllllyyyyyyy struggling last year when my symptoms starting regressing badly after a moderately successful Disulfiram course and the Pandemic hit with all it's subsequent lunacy. Focusing on these philosophies, and incorporating meditation has been useful for me.
Don't get me wrong. I'm still struggling with physical disease, and the resulting mental issues. I still have a pretty poor quality of life if I'm looking at it objectively as possible. That said, this time last year I was hanging off a cliff with one hand. This year, I've at least moved back onto the cliff side...even if I'm still staring down into the abyss. If you are interested I can try to point you to some sources where you can learn more about
it yourself. Regardless, I know from reading your posts here you have been through the ringer, and, we are fellow Dr. K failures! lol. I hope you are able to find peace my friend.
Post Edited (Lymie24) : 9/16/2021 10:25:52 AM (GMT-6)