Hi. I don't know the best way to start so here goes.
May, last year I got a tick bite and didn't get it dealt with properly. They claim there is no Lyme in Alberta Canada. I started to get some strange symptoms consistent with Lyme/mold later on in Nov. By March 2021, after going to see several doctors, I had a number of 'somatic' symptoms as one doctor put it.
All the Lyme tests I did locally came back negative.
So I did the run around trying to find out what was wrong with me. I found some mold in my home so I vacated.
I went to see a couple of NDs and sent out tests for Lyme(Armin Labs) and mycotoxins(Great Plains).
I recently got back my Armin Labs test and I am told that it indicates that I have Lyme. The paraphrased results are:
All the Elispot tests came back negative.-indicating there is no current activities against Bb.
The CD57+ NK cells absolute. =44ul range 100-360. Which indicates chronic immune suppression, which could be caused by Bb or other bacteria.
The B.burg + afz +gar.IgG. positive
The B.burg + afz +gar.IgM. negative
The other antibody tests are negative.
The antibodies indicate humoral responses against Bb.
The Great Plains MycoTox test reports that I had zero mycotoxins in my urine that day except for Citrinin which was at 231. Range <25. about
10 times the amount allowed.
So I am at a loss to how to proceed.
From what I understand I have CIRS. Canada has one Shoemaker certified CIRS doctor which charges an arm and a leg for his services. I don't know that he would treat me for Lyme under their criteria(I may be wrong).
The doctor I went to see about
getting the test for Lyme only treats it using a modified version of the Cowden Support Protocol, mostly antimicrobial tinctures. It is almost impossible to get antibiotics for Lyme where I live because the Armin test is not recognized as valid by our healthcare. I've started out on the Phase 1 part of the Cowden Lyme protocol which is building up a tolerance for Samento and Banderol.
I have also read that treating for mold needs to be done before you can have any success treating Lyme. I have gone out and bought a number of supplements for detoxification and binding the mycotoxins and have slowly started taking them.
My symptoms that are bothering me the most right now are neurological. Almost constant headaches. Inability to focus, anxiety, depression.
My headaches seemed to be associated with the anxiety. Ativan or CBD oil are the things that help.
I am sort of paralyzed now on how to proceed.
How important are antibiotics at this point?
Finding a LLMD in my area that can prescribe antibiotics is almost impossible. I am thinking of going to one in Vancouver, but the thought of the logistics makes my headache worse.
Are IV antibiotics any better at this point?
Covid and my financial situation make treatment in the US very difficult.
Any suggestions are appreciated.
Post Edited (Moggy) : 10/7/2021 1:18:52 PM (GMT-6)