Posted 11/2/2021 11:20 AM (GMT -7)
I woke up to an email from my doc and he said this. He did happen to ignore many of my questions. He's not really making me feel good about this...
I have ordered the Atovaquone to the pharmacy. I have only ordered a 2 week supply so we can see how you tolerate the Atovaquone before adding in the Azithromycin; this is all after you have figured out which supplements you can and cannot take. I do recommend being on the detox if possible. I do not recommend additional phosphotidylcholine at this time. I also don’t recommend exploring taking any more supplements than you are already trying to test out since you haven’t been able to tolerate many of them, so adding in any more or trying any more at this time I can imagine would be overwhelming. Try out the Atovaquone when you are ready, as soon as you start the atovaquone please try and take it consistently for a week, please schedule an appointment 1 week in from starting the Atovaquone so we can assess and see if we are ready to add in azithromycin.
I understand your desires to assess and treat for MCAS and CIRs. Again, I want to repeat my intentions are to explore these, but I don’t see moves we can make at this point due to your sensitivities. I believe at least addressing the most acute infection can bring your body relief enough that you can tolerate other treatments. Any further testing right now in my clinical opinion would not be wise. As I had explained before some of the testing is non specific and can lead us down a rabbit hole, and I don’t think we are prepared at this time to go down that path until we have gotten you some form of relief."
Now, I surely know I am a severe case. I react t he every little thing. Knowing that I have reactions to every piece of food that goes into my mouth and within seconds, I am in hell. I just don't feel 100% about this "kill the big infection first" thing.
Don't get me wrong - he is a nice guy. He just makes me feel like he hasn't looked into the other side of this. I keep asking why we are going after this first and not the mold. He thinks I would be too sensitive for that? I don't quite understand his reasoning other than taking out the worse one now. But, what if this causes me more hell? I don't exactly feel comfortable just killing. I do appreciate that he says to detox first. I DID tell him about how I have read on this and DID mention how there are other ways. I DID add my knowledge of NIH reports and showed my work. What gives? Or, am I just going about this the wrong way? I suggested taking charcoal, but he only wants me on 3,000 MG of milk thistle, as well as the regular herx-related stuff such as epsom salt baths, etc.
What the heck do I do!? Am I the only one that feels like this isn't... right!?
NOTE: I am not going to say the name of who this email was from. I think it would be wise so I can keep this post up. I felt a though this wa post was necessary for advice, especially with how I feel. Thanks!