I've been struggling for a long time, as many of you know. I'm exhausted and most days I honestly wish I weren't here but that's besides the point. I'm here for solutions.
In 2019, I started struggling to eat. I would have palpitations, and borderline throw up if I ate more than say 2 slices of toast at a time. I thought this was lyme related and thought treating the lyme would fix it. It didn't.
Anyway, this whole, borderlinte vomiting episode with heartburn began and I requested doxycycline. Which only made it worse, it wasn't a herx, but the condition progressed. To the point now, that I was having trouble with bowel movements and sensations. This as well as an awful, awful head pressure.
I was told by a nurse practitioner that it was a hiatus hernia. I thought okay, and read about
it on the web and thought okay surely it can't be this bad, it must be the lyme.
Before I go too far along, I must add that I started experiencing spasms and borderline pseudoseizures. This is as along with the previously mentioned symptoms. I seriously think they're interrelated. Everytime digestion get's worse - typically after lyme treatment, but now with certain foods like chocolate etc - the head symptoms get worse and there's some change to the seizureish symptoms, a worsening of the baseline.
Returning to the focal point. I have pain in my upper abdomen and chest. Pain around my heart and pain in my upper back as well as in my shoulders. It migrates around these points in a cyclical fashion, correlated with when I eat. There's also a fullness in my chest. Sometimes I feel a pain migrate through my lower abdomen as well in a clockwise fashion. Sometimes it's difficult to pass gas and I am burping almost all the time after eating food.
Does anyone have any ideas as to what it is? It's so bad that I know treating lyme isn't going to get the problem sorted, this is a secondary problem that lyme has allowed to fester. I am due a gastroscopy soon and I'm dreading it because of the sedation, I just hope that I don't end up too depressed afterwards.
I'm sick of it. With this nonsense diagnoses, I've been treated like a crazy person, where my life is actually being ruined and our stupid public healthcare system refuses to investigate properly due to the "costs." It's not fair. I'm watching years of my life pass me by with next to zero quality of life. Writing this alone has been a struggle for me. I want to be able to watch a film, listen to music, walk, eat unhindered and most of all get back to working and living a normal life.
Has anyone got any suggestions as to what to do? I'm tired of dismissive doctors and I'm tired of having some peculiar syndrome that just hasn't been identified. I need answers. I'm scared that even if it was a hiatal hernia, that the might not even do anything. My symptoms are so bizarre that it feels hard to get anyone to take me seriously which is a serious issue.
Post Edited (Cignet) : 11/24/2021 9:15:38 AM (GMT-7)