Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Kissing and transmission

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/12/2022 7:12 PM (GMT -7)
What's the latest research on Lyme and kissing?

After 10 years sad of being lonely because of this awful disease I met a cool girl. We both like each other. But she also has tons of health problems and a very weak immune system. I'm worried I could give her Lyme just by kissing.
So I'm torn between sacrificing my own happiness to protect her or try to make it work but could potentially be very bad for her.
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/12/2022 7:16 PM (GMT -7)
Actually, I'm even worried I could give her Lyme just by living with her.
profile picture
Girlie
Forum Moderator
Joined : May 2014
Posts : 46828
Posted 6/12/2022 8:42 PM (GMT -7)
From what I’ve read - kissing won’t transmit it.

“Just” living with her is safe. (IMO)
profile picture
Girlie
Forum Moderator
Joined : May 2014
Posts : 46828
Posted 6/12/2022 8:55 PM (GMT -7)
LLMD MR wrote this about transmission ;

“The Lyme infection, borrelia, can be sexually transmitted. However we do not know the actual rate or chance of transmission. There is limited science around this topic, but here it is.

Studies do show borellia in vaginal fluid and male ejaculate of those who have positive testing with Lyme disease (1, 2).
In one recent study, 13 people with lyme were studied. Of the 13 studied 3 were sexual partners. All 13 had evidence of Lyme in the genital secretions. The sexual partners in each of these studies had identical strains of borrelia (Lyme) detected in the male ejaculate and vaginal fluid. However the researchers did not clarify the length between sexual activity of each couple and when the specimens were obtained. Nor is there scientific evidence indicating how long borrelia can persist in the vaginal fluid after male ejaculation. Thus it is possible the detection of identical strains in the female partner could be from male secretions in the vaginal fluid rather than her own vaginal secretions. In addition, it is possible each person in the couple were independently bitten by ticks which each carried the same strain. Furthermore this study only included 13 people. Small studies of this nature often do not reflect what happens in the general population.
Lyme is a spirochete like syphilis which is well know to be sexually transmitted.”

“ On a positive note, in my experience when I practiced in Seattle, most who get a Lyme infection through sexual transmission do not develop Lyme disease. I believe most people have immune systems that are able to rid the body of the Lyme infection or keep it under control.“
profile picture
WalkingbyFaith
Veteran Member
Joined : Aug 2017
Posts : 7456
Posted 6/13/2022 9:03 AM (GMT -7)
Which one is it that was found in saliva - Lyme or Bartonella? I believe Buhner wrote about it. That doesn’t necessarily mean it can be transmitted that way. I don’t think transmission through saliva has been proven or disproven.
profile picture
RainyCloud
Veteran Member
Joined : Mar 2018
Posts : 2525
Posted 6/13/2022 9:40 AM (GMT -7)
Bartonella in dog and cat saliva.

Vimzor, I don't think you'll get a clear cut answer on it. It's probably best to show her all the data that you have and ask her what she wants to do.
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/14/2022 7:43 AM (GMT -7)
I guess you're right. This sucks.
profile picture
bluelyme
Veteran Member
Joined : Nov 2015
Posts : 6059
Posted 6/15/2022 7:37 AM (GMT -7)
kiss her ! life is short ...i rinse with chlorine dioxide mouthwash after . and pop an alinia preemptivly when my sick gf wants to get romantic... look around with lyme goggles and you will see 90 % of humans are already infected imho.

i thought i gave it to all my friends smoking with them , then i look at they're lifestyles and realized its not my fault. i did not bioengineer this steath pathogen, i just live here...and if u get a chance to do some living ...take it !
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/18/2022 5:05 PM (GMT -7)
I was looking into oregano lip balsem and chewing gum for myself. :p

But still, I'm concerned. She has Ehler Danlos Syndrome, one of the problems is that it causes a crappy immune system. We understand each other well because there's a lot of overlap in our symptoms. So the last thing I wanna do is make her even worse.

I wouldn't worry about kissing with someone healthy.
profile picture
bluelyme
Veteran Member
Joined : Nov 2015
Posts : 6059
Posted 6/19/2022 10:13 PM (GMT -7)
eds is a connective tissue disease that i believe often has roots in congenital borrellia . dime to dollar if you look at her blood under a decent microscope you will see spirochetes already.

as a plus she is probably very flexible, kidding aside mothers use abx to try and not give lyme to their babies , she outta be ok whilst you are treating at full dose ....
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/21/2022 4:39 PM (GMT -7)
I'm on sida acuta, houttuynia, cat's claw, oregano oil and cinnamon. Gonna add clove soon.

Basically this:

said...

Tier Two Bartonella Treatment Approach

Houttuynia plus Sida Acuta plus Cinnamon, Clove and Oregano Oil Combination
I started using the houttuynia and sida acuta together in the summer of 2015. Based on Zhang’s research I now include cinnamon, clove and oregano oil to treat persisters and biofilms. This combination effectively supports a Bartonella treatment about 70 to 75 percent of the time.

houttuynia 5 drops 2 times a day and increase daily by 1 drop per dose till at 30 drops 2 times a day.
sida acuta 1/4 tsp 3 times a day and after 1 week if tolerating it increase to 1/2 tsp 3 times a day.
liposomal cinnamon, clove and oregano capsules 1 pill 2 times a day (each capsule should include 75 mg of oregano)

Source: https://www.treatlyme.net/guide/kills-bartonella-a-brief-guide


More aimed at Bartonella than Lyme but there should be some overlap. I don't know if I'm taking enough stuff and at the right dosages to suppress transmission. You know how anxious this disease can make us..
So I'm very anxious about this. :p


said...

eds is a connective tissue disease that i believe often has roots in congenital borrellia . dime to dollar if you look at her blood under a decent microscope you will see spirochetes already.


Interesting. Is this your personal theory or are there some studies to back it up?
profile picture
Garzie
Veteran Member
Joined : May 2017
Posts : 3321
Posted 6/22/2022 9:29 AM (GMT -7)
it strikes me that we are discussing this as if the situation were - we are all uninfected - until we are exposed to some pathogen - and then we get infected - and then we get ill

this is the old model of acute infectious disease

more and more evidence is emerging that does not seem to fit well with this paradigm
eg
1, the study of the partners of lyme patients above having EXACTLY the same genetic strain of lyme in them ( could have been left over DNA of course - but may well indicate partner to partner transmission)

2, the sharply increasing prevalence rates of lyme in all developed countries worldwide - is this just from greater awareness - or is something else going on here

3, some of the more sensitive ( but admittedly less mainstream ) tests are showing around 50% of healthy controls have evidence of borrelia in them - eg Red Lab Phage based test ( i had until recently regarded this technology as a bit of a unsubstantiated outlier - but it seems the test was actually developed by published and per reviewed researchers in phages at the university of Leicester in teh UK - so its not just a " we are two guys in Belgium who have set up a lab with a new proprietary lyme test that we say is good" - type situation, as i had first thought).

4, think about how we humans evolved and lived up until the last few hundred years - typically dwelling in huts, caves etc alongside animals and their parasite vectors, a completely different level sanitary conditions - and therefore constantly exposed to tick and flea and louse bites - and their pathogenic bacteria - including lyme, bart, babs etc ( all of these species are much older than humans ) not everybody who got bit and "infected" by these organisms got ill - or we would probably not be around today to know anything about it

so what has changed - why are more of us getting ill with lyme et al in the last 2-3 decades

it may be that exposure ( ie getting bitten by something - or kissing someone - or having sex with someone ) is not in fact the main determinant of who becomes ill or not.
it could well be that exposure is commonplace and other factors determine who becomes ill
like immune system status / stress / trauma

i know i was living a very stressful life for the few years before getting ill - working ridiculous hours in big business as a kind of turnaround guy.

many many man made chemicals now in the environment are also being found in peoples blood, urine and tissues routinely - many of which are known to be disruptive to our immune systems or hormonal systems or both. microplastics are starting to come to the fore as another biologic dysrupter in ecosystems, animals, food chains and now humans.

modern life is just not conducive to healthy immune function - people are sleeping less, working more, and the line between work and home life is becoming more blurred in our always-on culture and as a result people are feeling more chronically stressed,
we are also exposed to bright lights at night, taking more prescription medications than ever before and eating a diet further and further away from our natural template than ever before ( note 60% obesity levels in USA and UK - which is also an inflammatory and immune system disturbing effect ).

so i ask you - do you think the average Joe today who is working too much, sleeping too little, living on pizza and natco's, permanently connected to social media, has several spare tires around their waist and gets out of breath going up 2 flights of stairs - is going to do as good a job of fighting off a stealth pathogen as a lean active hunter gatherer or smallholder farmer from a few hundred years ago living close to the earth.

i rather think this is the more likely picture of what is going on

that said i could not in all conscience, knowingly risk passing something as horrible as lyme et al on to anyone i loved on the basis that i did not invent it.

I'm all for living life - but i have just lived through 7 years of what happens to the person you love when they contract Lyme disease - and i would not wish that on anyone.

even apart from the moral aspect - it really would not do you any good at all in the long run to see someone you love suffer.

how to prevent it - that's a tough one - i really don't know if there is a way to be sure - perhaps there are ways to reduce the chances of transmission - eg continuous antibiotics - but we simply do not know enough to know by how much at this stage.

personally, i don't think i will be looking for more romantic involvement until i feel i have recovered - or the picture becomes clearer

if you are already in a relationship - and exposure has already happened - then the picture is more clear- more a case of just looking after yourselves to make sure the pathogens do not get a foothold -or at least do what you can.
profile picture
Girlie
Forum Moderator
Joined : May 2014
Posts : 46828
Posted 6/22/2022 2:38 PM (GMT -7)
“ i know i was living a very stressful life for the few years before getting ill - working ridiculous hours in big business as a kind of turnaround guy. “

I was also living a stressful life for a few years prior to my symptoms.

I was working full time in the staff scheduling office for our health authority - getting up at 4:40 - early shifts started at 5:30 am.
Off at 1;30 but most days going to visit my elderly father in the “home” before going home - to make dinner etc.
Some evenings going through work I had brought home that I hadn’t finished that work day.
- a couple years of this.
Then one evening I woke up with radiculopathy - left side of neck, across upper back and left arm. Excruciating pain and my left arm was limp.
Over time more and more symptoms appeared.

I wonder sometimes if I had at some time been bitten/contracted Lyme and my immune system was handling it until the stress/lack of sleep caught up with me.
profile picture
Vimzor
Regular Member
Joined : Apr 2016
Posts : 135
Posted 6/22/2022 4:26 PM (GMT -7)
That's also what happened with me. Got bitten when I was 10, didn't start becoming sick until I was 20. After a couple weeks of working night shift and a stressful period at home the house of cards called my immune system came crashing down.

Garzie said...
I'm all for living life - but i have just lived through 7 years of what happens to the person you love when they contract Lyme disease - and i would not wish that on anyone.

even apart from the moral aspect - it really would not do you any good at all in the long run to see someone you love suffer.

True but I also don't want to be lonely the rest of my life. Like I said before; this sucks.
profile picture
Sunflower1920
Regular Member
Joined : Apr 2020
Posts : 301
Posted 6/23/2022 1:52 AM (GMT -7)
Vinzor

LIVE your life. if she knows your struggles, she can take a more informed choice on what she wants to do, if she is OK with it then go for it. Life is way too short as we have seen.

I don't want to be lonely for the rest of my life either and at times slowly believe I might not ever get better or see a full 100%. I still want a partner/spouse and a child, at 37 time is ticking. I'm not getting any older and lost alot opportunities, positive milestones due to LD. But I canot live in a bubble anymore. It's been too long. People might say that's crazy and selfish and fear monger me for wanting companionship, a family, what they choose to do is their choice, God bless their struggles I get it. However, I cannot let LD dictate my life. I have to be realistic and not listen to the bad anymore and take a leap of faith like I did 18 months ago with going back to working a fulltime job.

Yesterday afternoon and moving forward into the evening I had an awesome day. Was it a fluke? The new protocol? I don't know but it was something I surely needed. If more of these days happen (still sick and treating) I might go back slowly into the dating scene.
✚ New Topic ✚ Reply


More On Lyme Disease

10 Steps For Healing Well With Chronic Illness

10 Steps For Healing Well With Chronic Illness

Painsomnia:  Getting A Good Night Sleep With Chronic Pain

Painsomnia: Getting A Good Night Sleep With Chronic Pain


HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.