Brain Fog and Staring

Hi,

I have been on ABX for years until my LLMD stopped it. Well 5 years later or more I have been diagnosed with Schizophrenia and in and out of institutions. (Been out a few years and am working.) I am on an anti psychotic and it works except for one day a week. Since January I have had Monday Stare Mode (I call it) My eyes have to stare upwards and when I close them I can't keep them shut. My eye lids kind of vibrate until I either sleep for a few minutes or relax in my car eyes shut and calm for 15 minutes. It has also just stopped on it own watching TV. Some days this happens for the entire day until I go to bed!

My psy doc prescribed Benztropine which didn't really do anything. I got sent home last week bc the brain fog and cognitive abilities were very bad and were obvious. I would answer the phone and I couldn't speak or think properly. I would use the computer program and not be able to navigate it very quickly. The boss noticed and asked me if I was ok or needed to go home. I chose home.

It has been going on a few years and is frustrating.

Thanks Traveler, I was bit by a tick in 2006 and it was stuck in my thigh. I never tested positive for Lyme, but had all the symptoms right off. My PCP refused to give me any antibiotics because I didn't have a bulls eye rash. "This doesn't happen in NC" he said. The first weeks were terrible. Joint pain, Brain Fog, Tired all the time. I went to a walk-in clinic, got them to prescribe me some antibiotics (after a bunch of tears) and then I quit my job and moved back home. Found an LLMD after a bunch of research.

Thanks for your insight. Hope you are better now too.

Walking by faith, thanks for the reply. It started a few years back at a different job on the weekends. It just always happens on Monday for me. I have to get up earlier on Mondays.

I have never been tested or treated for co infections. I just barely made an appointment with my former llmd. Now that I think it might be a small seizure I got my pcp a referral to a neurologist. Which on here sounds like it might not be that helpful. We'll see. I'm hoping being on antibiotics might help it.

It just always happens on Monday for me. I have to get up earlier on Mondays.

I would try getting up earlier on another day of the week to see if it happens then. I mention this because I am hyper sensitive to changes in my sleep! Your issue might be associated with the change in sleep rather than a lyme issue. Doesn't cost anything to test it out, right?

9to5 said...
Hi,

I have been on ABX for years until my LLMD stopped it. Well 5 years later or more I have been diagnosed with Schizophrenia and in and out of institutions. (Been out a few years and am working.) I am on an anti psychotic and it works except for one day a week. Since January I have had Monday Stare Mode (I call it) My eyes have to stare upwards and when I close them I can't keep them shut. My eye lids kind of vibrate until I either sleep for a few minutes or relax in my car eyes shut and calm for 15 minutes. It has also just stopped on it own watching TV. Some days this happens for the entire day until I go to bed!

My psy doc prescribed Benztropine which didn't really do anything. I got sent home last week bc the brain fog and cognitive abilities were very bad and were obvious. I would answer the phone and I couldn't speak or think properly. I would use the computer program and not be able to navigate it very quickly. The boss noticed and asked me if I was ok or needed to go home. I chose home.

It has been going on a few years and is frustrating.

Not saying I didn't have trauma that contributed but I do. Along with just being diagnosed with lyme, bart and mold toxicity I was also diagnosed over the years as bipolar, anxiety , depression and now bpd (borderline personality disorder) lyme and bart can do and cause all this. Abx made it ok not a huge difference but after a week of abx (clyndamycin specifically) my brain fog was at its worse in 30 years, along with staring , zoned out ,and eyes dilated feeling , especially when I walked In supermarkets and such with those bright lights it made my staring and eyes dilate even worse. Black mold also causes the eyes to do this. Seems light light sensitivity, flourescent lights made my anxiety and paranoia worse. I've been highly suspicious over the years with anxiety depression and sometimes I'll think I'm hearing or seeing things sometimes but I'm not schizophrenic. 1 thing to do is detox loads more. Only thing that minimized the symptoms wad was detox and do natural herbs . Abx destroyed my gut and probably gave me more phsycosis than I already had to begin with. Without detoxing I had increased phsycosis and tons of dissociation. I wonder if it's in part the trauma of being told there was nothing wrong all these years and not getting the right help just put on loads of anxiety depression meds and mood stabilizers that never seemed to work. Detox and natural herbs are great.

Post Edited (MedicalNerd) : 8/27/2022 6:47:32 PM (GMT-7)

Thanks Walking by Faith!