I am really looking for your advice here. I am 35 and have been suffering from severe sharp stabbing pains in my head for a number of years. The pain usually is on the right side close to the top of my head. I can't say that it is exactly in the same spot all the time, but it seems to be only on my left side. They first started about 12 years ago – sudden and very frightening pains. As my father has had a very interesting medical history (brain hemmohage (sp?), paralyzed below the waist...seizures etc - with no explanation), I was set up for tests, MRI results (2) confirmed nothing like a tumour was present in my brain. I saw a pretty famous neurologist in Toronto Ontario who diagnosed it as "Hemicrania Continua" (very rare - think I spelled that correctly). Indocid was the preferred method of treatment but as I have big problems with my stomach this medication was too harsh for me to take. For a while, I was put on amitriptyline as it has a pain property to it. I was on this for a year or so - it left me feeling exhausted and I was always bumping into things. Not much stabbing though. I did get migraines that started in and around this time but were not attached to the stabbing events – they would happen on different occasions. I would get visual disturbances like fans at the side of my vision and that would be the sign I was going to have a migraine. I eventually – at my wits end started seeing a chiropractor to see if he could help with the stabbing. This actually helped…I was able to get off the amitriptyline and things improved. I only had rare episodes of the severe stabbing.
A few years later, and now I am having this severe stabbing problem all the time. Every day this is with me. I now am a firm believer that this has something to do with my spine – at the top of my neck that is causing or a big contributor to this problem. I never had the neck pain before but when the stabbing would hit – in the past I would lie down on a neck pillow and gradually this seemed to get better and go away. Now my neck is so tender – I can’t play with my kids – running around and fun play for fear that my head might get jarred – which could trigger the pain. I can’t look down for very long i.e. sitting down reading a magazine…can’t cross my legs…VERY STRANGE STUFF… The pains are so severe it feels like someone is stabbing me with a very sharp object deep into my head. The pain last seconds and I am left feeling very frightened and bracing myself for the next stab. On one occasion a few months ago – I thought that I was having a brain hemmorage (due to my dad’s history and my symptoms) as the pain would not go away and kept stabbing and my left leg went numb. I called the ambulance and was rushed to the hospital. A CT scan proved nothing…was given indocid…things were getting better by this point though and then I was sent home.
I am having other health problems that I don’t believe are related (except maybe for the stress of worry and frustration), but I will mention them here in case anyone can see any links. I have been diagnosed with IBS – have been taking modulon 3x per day. I also have stomach issues – they thought there was an ulcer at one point via tests that were taken but they were not positive – I continue to have sharp stomach problems and have to be very careful with what I eat. I have been on a variety of medications the latest is previcid twice per day. On severe attacks I drink Maalox and xlylocaine to numb the pain. Fun stuff. I have some numbness on the bottom of my feet immediately above the heal (again..on the bottom of my feet) – it is about an inch or so strip that goes right across the bottom of my foot). I will get back pains without a direct correlation to lifting something the wrong way…they will just hit.
So there you have it….I am a mess. I find it hard to work full time each day – but I push through it. I really am looking for any thoughts – anyone who might be going through similar things – especially the head stuff – this is really where I am looking for help.
I am having another MRI this weekend of my neck…maybe that will show something. I have another gastro scope being done in a couple of weeks…maybe that will show something for the other….I am just so frustrated and so tired of dealing with this and worrying….I just want answers. I want to play with my kids and have the energy and feel well enough to do this.
Any help/advice/contact with others going through this type of pain would be very very much appreciated.