My names is Darren and my partner has been diagnosed with suffering from a hemiplegic migraine by here neurologist.
I have read books and searched the internet a to try and understand this type of migraine and how to "cope" with it.
I'll try and explain what here symtoms where/are to see what you guys think.
Last June she was leaving the house,walking down the path and "BOOM" her jaw dropped,speech started to slur,weakess in her lower left hand leg.
The clinic is only a 5-10 min drive away but on arrival she was completly paralysed down the left hand side of here whole body and couldn't talk.
First thoughts of her doctor at the clinic was that she was having a mini-stroke (TIA)
Once in A&E a cardio doctor was ask to take examine her and a TIA was ruled out because of her age (28) and that she didnt lead a lifestyle that would accustom this type of stroke to happen at such an early age.
This paralysis lasted for about an 1 and a half,which at this stage they had admitted her to hospital.
Whilst in hospital she had another attack and was sent straight for a CT scan to check for a TIA,which came back clear.
She was seen by a neurologist who carried out various tests including a MRI and it also came back clear and diagnosed her with having a "hemiplegic migraine with an aura" and put her on inderol (beta blockers) + Aspirin.Which he decrease of the rest of the year as he didnt like her staying on the beat blockers with her being so young.
Over the period from June to December 07 she had taken a further 3 of these attacks all leaving her with the same paralysis,although her full motor skills do return once she starts to come out of it.The attacks have never been more than 3/4 hr but leaves her with a sore leg.
Now the thing is since 13th Jan this year to today she has taken 9 of these attacks,all with the same symtoms and lasts for anything up too 3/4 hr.She was readmitted to hospital for a couple of days for observation and seen the neurologist again at which time he put her onto topomax 25mg a day to start her off.
Is this a good medication ?
Now that was on the 15/01/08 and since then the attacks have been coming 2-3 times a days and is really starting to scare me never mind her + plus the fact that most of the time she doesnt have a sore head but after it is sore and just tonite she said it felt as if their was like a pressure pain at the back of her head which has got the alarm bells ringing in my head.
hemiplegic migraine symtoms seems to me to cover a lot of other conditions like tumors MS,things like and th more i seem to read the more it becomes worse.
Sorry for it being a bit long winded but thats basically it in a nut shell.
thanks for replying or reading it.
What im really asking is that does anyone else have this type of migraine and is this the way it effects people or do we need to start pushing for more tests to be done as they are coming to qquick and too often.