Hi Bongobear!!! I am so sorry to hear the situation you´re in having HM attacks mostly every day that´s HARD!!
Are you on any medication now? Yes many of us has been in exactly the situation you are in now with your doctors,
soo often i´ve heard many of us say that the doc´s told them it was all in their heads even for me, sure they took me
for some nutcase and of course my reaction was that i never told them ALL of my symptoms, but i am
certain that those doctors surely have been sleeping a lot during their medical school lol !!! But Why could you not get
the medical disability? Just beacuse it is a rare disease? Noo you have too fight for it, you have a right like anyone else
to get it , so i´m sending you some strenght by the post office lol!!!
I was thinking that if you could reach the Neurologist who gave you HM diagnos and ask her or him, where you could
turn, to get help from another Neuro who has seen or have patients with HM.
Beacuse you really need help, i remember my first 7 month with attacks most of the time and always sitting in the
wheelchair and needed help from my family all the time, that was hard, and you have had it for 2 years wow!!
You also write that theese attacks runs in your family, relatives well i am certain that you have the FHM then, and if
you could get the geentest ( hope i spell the right word there ) if you haven´t yet of course? Well then you could have
it right in your papers no doubt about it anymore, you then have proof to show that it is not in your imagination!!!!
OK i have to go to sleep no it´s over midnight so we keep in touch, yes? goodnight / Sweden