My doctor said he's never heard of migraines like mine, does anyone have something similar?

Hello Ann and Geiser30,

Ann,
At one point I had told my doctor that I didn't want to be on any narcotics (because I know how bad the rebounds can be and I had been taking them way too often) for about 3 months to get them out of my system. Without them, the pain was completely unbearable and I was taking ibuprofin so often I had rebound headaches for weeks. I couldn't even leave my house because the sounds and lights got to me so badly I was passing out and throwing up several times a day. Now that I'm back on the narcotics I've been staying away from ibuprofin and things like that. I only take Tylonal #3 2-3 times a week and I get a shot of demerol once every 2 weeks. I don't have rebounds now that I'm more careful about how often I take the meds.

I've seen 3 different neurologists that specialize in migraines, but they all gave up on me after they tried everything they knew of to treat me.

Geiser30,
I used to go to the ER every week, they gave me such a hard time about it; telling me I was a drug addict and that I was making the headaches up...that isn't something you want to hear on a good day, let alone a day where your headache is so bad you're forced to come into the ER. My doctors tell me pretty much the same thing your's tells you. They don't seem to understand that after having headaches for so long, you can tell the difference between your normal headaches and rebound headaches. They also don't seem to understand how nice it is to have just a few minutes of relief from your headaches is, let alone a few days.

Thank you both so much for your replies,
~Liz

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Dx: Chronic Daily Migraines & Chronic Depression