doctors have to eliminate other diseases that is how they end up with a definite diagnosis. I have in the past 5 years had MRIs, Ct scans, EEgs and just recently a ENG. Of course if I read on it there are some scary options that it could be but I can't stop and worry myself like that. I have a life to live. Que sera,sera! I will deal with whatever it is when they figure it out. Oh, I don't say that I don't think about it but I try to be positive. I have had a lot of the same symptoms as you and they told me it was a form of migraine. 5 years later, they're still not sure what it is. They're running all kinds of tests and hopefully it will lead to a diagnosis and a cure. Not knowing is the worst but please don't drive yourself crazy over this! It's not worth it and it won't amount to nothing worthwhile. Keep us updated on what's happening! Take care!