Severe Headaches - Worried - Help?

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Date Joined Aug 2005
Total Posts : 151
   Posted 2/4/2008 5:19 PM (GMT -6)   
I am having really strange headaches, that I call crippling, because they are so painful. 
It started about a month ago, I was having bad pain in my mouth, resembled a toothache.  It was also causing a headache.  Went to the dentist, he took an xray, and said my sinus' were flared up, and plainly visible on the tooth xrays.  So he gave me Antiobiotics and filled a cavity I had.
The antibiotics didnt help, nor did the Advil I was using. 
So I went to my family doctor, and he gave me stronger antibiotics, and some Vicodin for the pain.  (I'm not a pill popper, but this pain was excruciating, I needed something so I could sleep).  He agreed on the sinus thing.
The new antibiotics seemed to work.  I guess??   The pain/headaches went away after 3 days. 
I say they went away for about 2 weeks.  Now they're back, and worse than ever.
Called my doctor 2 nights ago, he called me in the same antibiotics, told him not to worry about more pain medicine, as I'm not one to take them anyway, plus I had some xtra vicodins leftover.
That is the history.  Here is the problem.
These headaches are like no other Ive ever heard of, I cant even find anything on the internet, and what can't you find or hear about on the internet!  I honestly do not believe they have ANYTHING to do with Sinus.  I could be wrong, but Ive never in my life had this when Ive had sinus problems.
They cause my lower gum/teeth to hurt, which radiates back into my jaw bone, making me feel like I can barely open my mouth, the pain then radiates into my temples and behind my ear.  Sometimes my tongue hurts too - well not hurt, but it feels "Strained".  Everything on my head is tender.  If you touch my hair it hurts (during this episode).  Sound and Vision intensifies, to the point it hurts.
It comes and goes.  It's an intermittent thing.    Sort of starts out slow, and then quickly escalates into a very very painful thing, then slowly backs off.  When it backs off, it feels SO GOOD.  That's how painful it is.
Id say they last anywhere from 30 seconds to 2 minutes.   Then they stay gone anywhere from 5-30 minutes.
Primarily at night.  Worse at night I should say.   It happens in the daytime, but not as often or severe.
Have you ever in your life heard of anything like this?!   I am so concerned.  Nothing is helping. 
SOMETIMES, if I rub ambesol on my gums (which is where and how the pain starts in my mouth)  it might stop it before it starts.     But the dentist says it's NOT a tooth.
WEIRD! :(   I am so worried.

Just Peachy

I would rather live my life as if there is a God, and die to find out there isn't, than live my life as if there isn't, and die to find out there is ........................... St. Thomas Aquinas

Veteran Member

Date Joined Jan 2006
Total Posts : 1308
   Posted 2/5/2008 10:44 AM (GMT -6)   
Hi Just Peachy,

I am sorry to hear that you are suffering so much! I am no Doc but it sounds to me like Paroxysmal Hemicrania which as quite a rare headache, but you do get referred pain into the jaw. It is not too dissimilar to Clusterheadache, but PH is usually very short lasting as in 30 seconds to a few minutes and there can be many attacks per day/24hr period, where Ch last for 2 -3 hours!

This type of headache is often misdiagnosed as a Sinus problem.

You need to get yourself to see a Neurologist who is a Headache Specialist - you may need to travel to find a good one! There is a way forward with this but you cannot do this without the help of a Headache Specialist!! The pain of PH is excruciating!!

All the best with this, please let me know how you get on, take care

Co-Moderator of the Migraine/Headache Forum

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