The words you wrote mean alot to me.I understand the pain part.So many times I'll snap at family out of the blue.They get shocked because that's not me.It sounds weird,but I miss who I was.I mourn for the person I was,flaws and all.I had energy,I was a people person,I am grateful that I didn't have this migraine situation until my daughters were raised,well,the youngest really got cheated.But I've done the best I can.I have a dry sense of humor and I try to watch shows like Scrubs or Weeds that bring me up.
My doctor,when I had insurance,sent me to a physical therapist known to help migraineurs.No luck there.I tried accupuncture.I went to an internal medicine doctor after my neuro closed his office.I had a horrible time with thyroid.No one in my family ever had a problem,so I never dreamed I would.I was ignorant where thyroid was concerned and always thought only heavy people get it.They said it was hashimoto's.I had goiters,it was getting hard to swallow.They put me on steroids and then when the swelling went down did the biopsy.My hair was falling out.My face was puffy,I looked like death.I was so tired and I had what the doctor thought was a throid storm which set off panic attacks,which I started taking klonopin for and am still on.
I tried topamax and I never believed in side effects too much of meds,but I never had a med make me so ill so fast.I still think I have thyroid issues.What happened with my insurance was that after a year of having insurance,they said my thyroid was pre-existing.They then put just about everything under it and wouldn't pay for months worth of office visits and treatments I had.Even tho many,like my internal med doctor was for migraine and I was getting hormone therapy and a yrly checkup,they never paid her or the lab a cent.I was so sick then that I couldn't fill out the mountain of paperwork sent to me by the time they told me they wouldn't pay.My endo's office said this insurance company is known to do that.She said it wasn't legal for them to just stop paying the endo,but they did.So,I lost all the doctor's I had,I paid all that insurance and owed the doctor's.So they really got me good.
I've done the tea that the accupuncturist gave me to make.I used to go to the fitness center but couldn't because of the pain.I haven't been to church in so long.
The er treatment here is to say the least horrible.I went in one time and they put me in the room where they put casts on,the brightest room.I told the nurse I couldn't be in there,she said it was all they had.Less than 5min later she came back in and said they had to move me.I told her I'd get sick if I got up.I got up and passed out,instead of falling forward,I went back.The pain shot up in my head,I started convulsing.A doctor came over and grabbed me by the arms and yelled in my face to stop it.I passed out again and was in another room,dark.
Another visit,I knew it would be a wait,we got there at 5:20pm.I was in a hospital wheelchair,I was so dizzy I couldn't walk.about 3hrs later a man about the same age as me came in,in a hospital wheelchair with a cloth over his face.I knew right away it was migraine.They took him in right away.By 10:15pm they had seen everyone that was there when I came in and 8 people that came in after me.One guy walked in,they took him in,he left,driving himself with a prescription.So finally,I had to say something.My daughter was sitting there with tears just streaming down her face.I go prepared,sunglasses,ballcap,small blanket.Anyway,after complaining,the nurse threatened me with security.Amazingly,I was seen next.
There's more but you get the idea.I keep dramamine for vomiting,because once I start,if I don't have that here,I don't stop.The clinic I go to is very good to patients.They really care.I take effexor,which I want to get off.I told my counselor(the clinic has a policy if you're on klonopin,you have to be seen.Anyway,I told him I can't do the pain anymore.Oh,I skipped the one er story that was the last time I went there.My doctor gave me a letter to take to the er,she called and told them I was coming.She said on the phone and in the letter that she wanted and I needed to be admitted.When I got there and finally was seen,they wouldn't look at the letter in triage or when I was seen.They said they didn't care who my doctor talked to,it didn't matter what the letter said.
So,my plan is to get another letter from the doctor and go to a larger hospital in the next county.I've had 2 kids natural childbirth,one c section,2 kidney stones,4 teeth pulled at once,a broken ankle,but this pain for this long is too much.So,if they don't do something for me there,they can just put me on the mental ward.I know someone who is a friend of a doctor there and he can help me.I will be getting a hold of my doctor tomorrow.And something has to be done.
Sorry for the long reply.I don't talk too much about the pain,in fact it hurts so much to talk,I don't talk much at all anymore.So I guess I got carried away.
If my plan doesn't work,I'll be back to let it be known.Because at that point,I'll really be stuck.