Doctors! Why don't they care?

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HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 2/15/2008 6:09 PM (GMT -7)   
I've been to the Dr. 3x's about my migraines/headaches that hasn't gone away for 2 minutes since January 11. He put me on Topamax last Thursday. After 2 pills (25mg) I had so many side effects I quit taking it. So Monday morning I call and let the Dr know what happened. A nurse called me back and said she was going to talk to the Dr. about another perscription. So they call me back today - FRIDAY and want to schedule an appt. for monday so he can get me another perscription. Why wait 5 days to call me back only to make me wait a whole weekend before I can get help? Like it wasn't rude enough to make me wait 5 days b4 I get a return phone call. mad   And no, this is not the 1st time my dr. has done this. Last time I called 1st thing on a friday a.m. cuz my migraine was getting worse and worse, nothing was helping. After my 3rd phone call and no return calls and perscriptions called in, I had to go to urgent care and get a shot...which didn't do anything to help the pain, but helped me sleep for about an hour.
 
I'm counting down until my appointment with my neuro on March 17.
 
Sorry to rant so long, I'm just aggrivated!
 
Amy

marylin
New Member


Date Joined Aug 2007
Total Posts : 15
   Posted 2/17/2008 2:28 PM (GMT -7)   
  Amy,
    I take it this is the gp you're talking about.I've got a good dr at a clinic,better than when I had insurance.There's a neuro that works with them and I finally see him on the 3rd.I keep a pain diary.I have been 24/7 w/out pain for over 3yrs and mostly all the time it is a high level of pain.I keep a pain diary,it's a good way to find any triggers too that may increase your pain level.It also helps me to really be able to tell the doctor what I'm going thru emotionally.
   Someone told me once to keep it also in case you ever apply for disablity.I've had doctor's that care and will even want the copy for their file.I've had some who can't wait until I'm done talking so they can get me out of the office.
    I'm glad you have a neuro appt soon,even tho it doesn't seem that soon,specialist are hard to get into.Try to let your doctor really know what you're going thru.It took me awhile to really SPEAK UP because I was raised that the doctor was always right.Migraine is a wierd disease and many doctor's don't like to admit that they don't have the answer.
    If you have to go to urgent care to get shots before your neuro visit,if your doctor doesn't get it,you do what you have to do.Your important visit will be with your neuro.I always write down what I have to say or ask,because once I get in there I will end up forgetting.I hope you get a good neuro,one familiar with headaches/migraines.Your other doctor,well,depending on how tomorrow goes,once you have your neuro visit,if you're happy w/the neuro,I'd find a new gp.
    Best of luck

sarahswan
Regular Member


Date Joined Dec 2007
Total Posts : 57
   Posted 2/18/2008 9:34 PM (GMT -7)   

Amy - It's nice to have a safe place to vent, isn't it? *smile* When doctors aren't fully aware of your situation or aren't listening it can be very frustrating.

Marilyn had some really good points. She pointed some things I've also experienced going to doctors for migraines as well. Migraines are a specialty disease...not a lot is known about them by most doctors, or taught to the general population of doctors. And yet no doctor wants to say "I have no idea what to do with you." My experience was that it got worse with neurologists. General neurologists specialize in neurological diseases, but that is an extremely wide field and they didn't have the expertise to deal with intense migraine cases either (the ones I dealt with, not every single neurologist out there *grin*) but they DEFINITELY didn't say that. The great thing is that I believe there are  no such thing as coincidences...everything happens for a reason. One of the biggest down points for me was when a neurologist I was seeing was so furious when I asked her for a referral to the mayo's migraine clinic that she kicked me out of her office. Literally. She said good luck, and that "we" had gone as far as we could in treatment. I was in such despair I came home and sobbed...I really had NO IDEA where to try  next. What came out of that? A referral to a neurologist who specializes in migraines...the person who I finally got some help from! So a really long post to tell you to hang in there...the right person is going to come into your life to help you with your migraines (it might just  not be this current dr :)).  Good luck, and don't be afraid to speak up for yourself!

 

Millsy
New Member


Date Joined Mar 2008
Total Posts : 1
   Posted 3/17/2008 3:46 PM (GMT -7)   
There are neurologists who specialize in headache. Definitely the way to go. Even so, I fire doctors who do not return correspondence within a reasonable amount of time. That means 24 hours, a lot less if I am experiencing terrible head pain that I can't control with the meds I have. I don't care how good the doc is, if he isn't available when needed, good-bye.

Defrostmode
New Member


Date Joined Mar 2008
Total Posts : 13
   Posted 3/17/2008 4:42 PM (GMT -7)   
I hope everything works for you at the Neurologist and you get something figured out... I know how the routine goes with Doctors not caring... not finding a solution... or just thinking you are just wanting attention and/or drugs.

to me it is offensive and depressing all at the same time...

HeyAim
New Member


Date Joined Feb 2008
Total Posts : 16
   Posted 3/18/2008 2:36 AM (GMT -7)   
Thanks for the replies. Since my first post I fired my orig. family Dr., hired a new family Dr., and went to my 1st Neuro appt. yesterday. I'm not sure how much help it's going to be. They have me trying so much stuff between the 2 Drs.
Right now I'm taking...
Verapamil 80mg 3x's day (originally for prevention, now my blood pressure is high...go figure)
Depakote ER 500mg 1x day
B-2 400mg 1x day
Magnesium 250mg 1x day
Melatonin 3mg 1x day (I added that so I can sleep a bit at night)
 
My family Dr. gave me Imitrex to help with pain, but it only helps for a couple hours and then I'm right back to where it was before and it keep "growing". My neuro just gave me Amerge which I took last night, but it's growing again, so it's hard to tell where I'm going to be by this afternoon/evening. We believe I'm just having mentrual migraines (20-22 day cycles). Migraines lasting 6-9 days with at usually 1-2 between my cycles, so all in all I'm down at least 1/2 the month. I haven't been able to work a full week since this all started on Jan. 11.
 
Thanks for listening!
Amy
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