my apparent "cure" for acephalgic migraine... anyone heard of this? where do I go from he

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research_babe
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Date Joined Jan 2008
Total Posts : 14
   Posted 3/26/2008 6:51 PM (GMT -7)   
This past month during one of my episodes (for those of you who aren't familiar, acephalgic migraines are migraines without pain but can be just as debilitating, sometimes more so) I was typically and completely unable to respond in a state of total body paralysis, if you will, and my husband began rubbing the back of my neck... within seconds I was able to take in a deep breath and open my eyes, within a minute or so I could start vocalizing, began speaking, and shortly thereafter was able to regain enough coordination to push upward on my neck near the base of my skull so that I could keep myself from going back "under".  Essentially, I was giving myself traction.  I had to keep doing this until the episode was over or I'd slip back into a conscious oblivion but... after about an hour or so, I was home free.  I've been able to "treat" every episode since then this way successfully.  I'm excited that I found something but perplexed at the same time.  I've had years of chiropractic treatment that have not eleviated classical migraines or acephalgic episodes so I don't get it... Why is this working?  Is there something I can do to make it permanent so that I stop having these episodes altogether?  Right now, I am not allowed to drive... if I could get rid of these strange migraines, I could get so much of my life back.  I'm not on any drugs- my neuro said there was nothing he could do for me if I didn't want to take Topamax.  I feel like there's got to be a doctor out there somewhere who knows what this is and can help... but I haven't the faintest clue where to begin if a neurologist isn't it and a chiropractor isn't it... than who is it???

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 3/26/2008 11:36 PM (GMT -7)   
You might try looking for a doctor of osteopathic medicine who specializes in musculoskeletal manipulation. It sounds like what you have discovered for yourself might be exactly what they practice every day...they are medical doctors who can also treat using manual medicine, and some of the treatments are very effective for headaches and even migraines. I'm an osteopathic medical student so I can give you more info if you want - it might be worth checking out.
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research_babe
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Date Joined Jan 2008
Total Posts : 14
   Posted 3/27/2008 12:27 PM (GMT -7)   
Yes, please, please, please, send me more info.

Sarita
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Date Joined Mar 2005
Total Posts : 2486
   Posted 3/27/2008 1:24 PM (GMT -7)   
Hi there,
It would be best to start by going to www.osteopathic.org, which is the website for the American Osteopathic Association. From there you can visit links that explain what OMM is, how it is used, the research that supports its use, the licensing process of osteopathic physicians (same as MDs), etc. and you can also look for a specialist in your state. If you've been struggling with this problem a long time, you should do your research and make sure you find a DO that perhaps specializes in headaches if possible, but if not, any DO who has done a family practice residency and is certified in OMM should be able to help you.

The nice thing about DOs is that they can use a combined approach - i.e., manual medicine plus traditional drug therapies - to help relieve your pain. It's like having an extra tool in the toolbox. I wish you the best of luck, and let me know if you have more specific questions.
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Annuk
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Date Joined Jan 2006
Total Posts : 1308
   Posted 3/27/2008 2:46 PM (GMT -7)   
I think it is appalling that your Neuro has said that he cannot treat you unless you have Topamax, this is ridiculous as there are many other treatments you can try, and it may be that Topamax would not suit you. Some sufferers get good relief from this drug and others the side effects are too much.

You really need to see a Neurologist who is a Headache Specialist as they understand Headache far better than the ordinary Neuros.

take care

Ann
Co-Moderator of the Migraine/Headache Forum

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