Post Edited (korbnep) : 4/30/2008 7:00:08 PM (GMT-6)
It sounds to me like you really had a thorough work up. You are young but then again I first had migraines when I was in my early teens and they lasted until I was pregnant. The problem comes when we are young, scared and inexperienced with these sort of health issues and things just keep seem to be getting worse. It is really rough - especially to be young and feel like you are missing out on your life. I would say your neuro is doing everything he should but if you want a 2nd opinion there isn't anything wrong with that. I would not be overly concerned about not having a spinal tap if the neuro didn't feel you needed it. I would ask my primary though why she had felt it might be a good idea- that could help to set your mind at rest.
Sometimes it takes a while to find the right combination of meds or anything that help a ton - many of us are still looking for just the right combo. Migraines can be difficult to treat and to understand, on the part of both the patient and the doctors.
I don't know if you will feel better or worse knowing that I have eye pain and pressure, dizziness, ear pain, jaw pain, back of the headpain, ear noises, stuffiness, tears and many other symptoms when I get a migraine. Very frustrating to me are the verbal & written problems I get.....problems with words coming out right, occasional dyslexia, that sort of thing (these are also common problems with migraine). I do get auras before most of my migraines. I do have several different types of migraines.
Have you ever looked into what foods you have consumed before a migraine or dizzy spell set in? There are foods that are best for many folks with migraine to avoid. Also, believe it or not exercise is good for folks with migraines and some even find that the endorphins that are released from light exercise are helpful when a person has a migraine. There are lots of websites out there with helpful information and ideas. I would suggest passing any new ideas, supplements, herbs, etc past your neuro to get his opinion though.
You asked about my doctor. It is actually a clinic- the Michigan Head Pain and Neurological Institute in Ann Arbor MI. (www.mhni.com). They do have a long list of new patients so it can take some time to get in to see them. Although I love my doctor to death and am very grateful to he and the clinic for all the help I have had there over the years I must say I am considering changing to Diamond Headache Clinic in Chicago because it is much closer to home. I am following up every 3 months with MHNI now and that entails a 4 hr drive. They won't prescribe anything new over the phone, and although they do get existing patients in for emergency appointments so if I have a bad flare up (like now) it would mean another 4 hr drive each way. That is starting to get us down as my husband, the driver, isn't overly well either. So going to an out of state clinic definitely has draw backs!
I hope you feel at least somewhat improved soon. Best of luck!