Sorry to have kept you waiting--I've been rather occupied the last few days. As of right now, I am being "treated" (and I use that term very very loosely) by Jefferson still. Really, though, Dr. Nahas there is just prescribing my daily medications + painkillers monthly while I try other avenues. I have a lot of respect for how much effort my neurologist at Jeff put into trying to help my headaches. Also, she was always extremely kind, compassionate and patient. I admit that I am rather disappointed in their (lack of) help in my search for additional treatment, after they ran out of ideas.
I handled it okay on my own though. I will probably be seeing Dr. John Castaldo soon, the chief of the headache center at Lehigh Valley Hospital. He's very good friends with my uncle, so I shouldn't have to wait for an appointment really. As a bit of a tangent, he has written a book that I've heard very good things about (http://www.amazon.com/Tattoo-Other-Tales-Uncommon-Wisdom/dp/1932100962/ref=sr_1_1?ie=UTF8&s=books&qid=1210479249&sr=8-1 -- all 14 reviewers give it 5 stars). I've also been in contact with a doctor at Drexel University Hospital concerning ketamine infusions. I just changed to a new psychiatrist and a new psychologist.. I'm not certain what to think of them yet, but they're much different than most of their colleagues and since I've been seeing them I've been in a remarkably better mood, which has made my life so much better even though my head pain is still VERY high and I'm still in the throngs of that endless 6 year headache.
I have plans to see a ton of other doctors verry soon also though. In no definite order, a: Chiropractor, Allergist, ENT specialist, endocrinologist, dietitian, sleep disorder specialist (for the 4th or 5th time), and I think a few others that I cannot recall. I talked to Montifiore but they did not feel that they could offer me anything new.
Well, I'm very sorry to hear about your Dad. I've had some emotionally tough times recently as well, but that is truly terrible to hear. I hope you are able to cope.bbAs I know I've posted many times before (but maybe not in your threads), I tried Botox 2-3 years ago I think. I was initially just the least bit reluctant because of the cost, but it turned out to be amazingly cheap, despite having heard several people discuss very high costs. Originally I was told that the prescription for the toxin would cost about $500 and the injections about the same amount. And they said that a lot of insurance companies won't cover any of it. I don't really know about that statistic, however, since my mother's insurance (that she gets as an Einstein Healthcare Network employee) covered all but $15 of the prescription and our regular Blue Cross HMO covered the injections (minus the copay). Needless to say, I still wasted those $30 or so since it never worked for me.
I've read that the treatment is very successful for many people and I very much hope that you increase that number Ashley :)
DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin