After trying for so long to get answers and getting nothing, I have found myself here in your forums
I am 30 years old.I am a divorced Single parent of 3 children under the age of 12.
I will try to make this as short as possible...
diagnosed with scoliosis 1993/c-section 1996 /miss carriage 1997/ c-section 1999(BAD EPIDURAL) /misscarriage1999/ c-section 2000 / hernia repair left side 2003 / right leg vein removal groin to ankle 2005 / diagosed spina bifida occulate 2006/Hernia repair 2006
As a child I would have headaches-Just thought it was a normal thing to get one here and there.My parents never medicated me for them would always say take a nap or rest it off..I just assumed it was normal.through out my growing up and early 20's i seemed to still have headaches but seemed to come every couple weeks and last a day or 2.last year while at work i reinjured myself having to have a second hernia surgery.Opposite side of the first a few years prior.When i woke from the surgery I begged for mercy to everyone around me.The pain was so unexplainable and just overwhelming.The dr's gave me more iv meds.I complained about the headache and how my right side felt so weak and my leg and hip HURT.It was so bad.It was the exact same pain i felt during a bad epidural experience..They didnt seem to concerned with any of it just to get the pain away.Eventually I was able to tolerate the pain and i was released that day to recover at home from the surgery. Since that surgery I have not been able to even go back to my job.I have so much pain in my right leg and hip and I get massive headaches at least 3 a month sometimes more..Some worse then others..about 3 months back My children and I were watching a movie and I felt This bubble feeling in the right temple..It was proceded with a warm numbing sensation surronding my right eye and temple,before I knew it I was having the worst screeching pain running through my right side of my brain.At one point i sware to god i could hear it inside my head screeching.I went and layed in my bed and I dont remember anything till 3 days later.
My oldest daughter who is 11 cared for them and me through out the days i was ill.She explained to me and the dr that I was talking to her and the other kids but most the time i was laying there with my eyes closed talking to myself.My daughter gave me vicodin she said as i asked for it.She knows medicine well from me explaing to her about it.she was familiar.Sititng in the dr office with her was scary,I felt like she was the mom.She started giggling to the dr and said That i was even talking to my Grandfather (who passed away 4 years ago) she made a comment that will haunt me for a long time.My dauhter said I was laughing and talking about how he would clip his nails in church when i was a kid and how it would drive grandma nuts..She said this and just giggled. I have not had that memory In 15 years and for her to say that to me was as if my memory was actually invaded in someway.How could i say that outloud to someone when i didnt even remember it.What else am i lacking in memorey? and why am i having these headaches?
Dr's ran test after test finding nothing! The dr has so far labled it fibromyalgia because f my muscle aches all over my body.I do have ciatica nerve damage but they dont know why.I repeat my story over and over to the dr's about the epidural experience and they just blow that off as nothing.But since I had that bad epidural is when all this started.The right side pain and the right side migraines.
My migraines can come w/ a fever and severe vomiting.The right temple will feel as if it is going to pop right open,My right eye will burn and be so heavy i cant keep it open.any sound,light,SMELL,movement only intensifies it.I have tried so many medicines and it seems all the dr's are trying to do is numb the pain.The last medicine i was on was topamax.It did absolutley nothing for me.I have had mri's and ekg's and emg's Blood tests heart utrasounds..And all they can tell me is we will figure this out..Its been 8 years and many dr's later..What can i do to help myself?? I have to start supporting myself and my children before i lose my apt and everything else.My X husband pays a good amount in child support.I live on that alone-no welfare-If i chose welfare they would take my child support away which is more then welfare.But even so at the end of the week we are hungry and unhappy.My children have become little adults and it scares me to think i will never get help and find a answer! I cant live this way forever,I want my kids to enjoy there lives to the fullest and not be worrid about me.
If anyone has any advise please please respond.I am exhausted and am at a stand still in what to do next