Hi!!! to everyone who has left messages on this forum!... i have continued struggling along and for some reason i wasn't sent any notice that people had written on here... i am really annoyed i didn't know people had responded. but better late than never
Ok, to get straight to all the questions which i have read.
i am still currently suffering 24 hours a day, this constant headache has really stolen all of my life now for 5 good years. i am currently under one of the best Headache Neurologists Prof P.J Goadsby who i see privately at Queens Square in London, UK.
But in saying that i am only able to see him once every 3-4 months which is proving almost unbearable as it is extremely dificult for any doctor to successfully concentrate and treat a young patient with a complex condition such as constant severe headaches seeing them 3 times a year...
my mother and my family have been torn apart by my condition, and i am now considering very very soon maybe in the next few weeks going to America to the famous MHNI Michigan Headache Institute Hospital.
* IF ANYONE HAS INFORMATION OR EXPERIENCES IN REGARDS TO THE 'MICHIGAN HEAD PAIN & NEUROLOGICAL INSTITUTE' PLEASE DO GET IN TOUCH URGENTLY!! I WOULD SOOOOO APPRECIATE IT!! *
Apart from being under Prof Goasdby for almost 2 years with not even a 1% improvement so far in my condition, i have also been through probably one of the most diverse selection of Neurologists working all around London with zero breakthrough's and no improvement, just more and more money going down the drain...
for all people on this entire forum i think all headache sufferers need to help each other and something needs to be set up where all similar individuals can seriously discuss, chat or even get in direct contact with fellow sufferers... i think Healingwell.com is a great site but for those who literally like me can not go on anymore and are desperate and passionate about
getting better for good we really need to all in some way be in much more contact or form some form of online chat group...
from my experience of approximately around 15 of the best Neurologists practicing in Greater London in the UK, one thing which is clear is they never have enough time to really get to the bottom of the problem... everything runs for the timed hour or more and then its out the door with a new prescript
ion or glimmer of pretense hope as you walk away. BUT NO IMPROVEMENT.
NOTE: My condition still remains the same although it has worsened in the last 6 months.
- Constant Pressure like sensation over entire scalp
- Constant Pain, ache in the face, the temples, above the eyes, behind the eyes
- Often blocked, stuffy nose, lots of phlegm in sinuses
- Dizziness, confusion, generally unable to focus or concentrate
- Often sharp intense throbbing pains, around eyes, over temples and scalp
- Constant dry scalp, dry itchy hair, Alodynia burning pain of hair
- Dull but severe Pain around eyes, like severe constant eye strain all day
- Depression obviously & increased anxiety
My best wishes go out to anyone who has written on this forum to me, and my appologies for not writing back, please do write anything you want & i appreciate more than you can imagine people having an interest in my case.
Richard X ;-)
P.S Please feel free to email me or directly get in touch with me through my email address which is
Post Edited By Moderator (Annuk) : 8/22/2008 4:47:48 PM (GMT-6)