Post Edited (SPEEDSNEED) : 10/18/2012 2:31:32 PM (GMT-6)
Post Edited (SPEEDSNEED) : 5/17/2011 3:12:54 PM (GMT-6)
I haven't actually posted in a forum before so I hope I am doing this right. I was actually on the internet looking for an article about Nuelin. I noticed that you have been getting headaches that pain killers don't help and I just wanted to tell you that I am on Nuelin also (and have CFS) and have been getting headaches. I was have been experiencing a hot head and the headache can become like a fire feeling under my skin. I do know that the Nuelin drug has a fine line between being theraputic and toxic and for me the drug seems to be harming me even though the level in the blood is normal in tests. I was wondering if you could ask your doctor if you could come off the Nuelin to see if it helped.
Post Edited By Moderator (tysmyboo) : 5/30/2009 2:19:26 AM (GMT-6)
I am up late...I won't be able to respond much but I did want to say that I have seen a pattern of sinus infections, concussions, whiplash/car accidents in the people that have come here in severe pain.
Let's see if we can get to the root of things and think about how that is affecting us now?
TMJ- that would be directly related to your jaw, face, teeth etc
Sinus infections- nose, eyes, under the eyes
My point is, I wonder if we can all get together and mention these things that started early on and maybe led to the severity, frequency or intensity of our head pain so we can find commonalities!?
Post Edited By Moderator (Annuk) : 6/12/2009 10:30:11 AM (GMT-6)
I have just joined. Your story is very interesting. I have also seen Goadsby and wasn;t too impressed with his social skills. He was very unsympathetic and I also tried the DHE treatment. Having gone through years (15yrs) of headache that has progressively become worse I am now going to Cleveland Clinic in Ohio for a 3 week headache programme. I am currently on pregabalin to help with the anxiety and also neuropathic pain on scalp and also take daily solpadiene and also venlafaxine. How are you doing now?
Post Edited (SPEEDSNEED) : 6/5/2011 7:31:51 AM (GMT-6)