Overview of Entire Headache / Pain History
Written by myself the Sufferer... NOT THE DOCTOR!
Note: I hope this provides a short, direct and valuable overview of my condition, diagnoses and treatments as well as my own opinions to the cause or underlying problem…
Currently aged then around 17 years old in 2003, overall of quite normal health, Glalandular fever, mild Anxiety and very hyperactive but had NO history of headaches, or any cranium region pain or anything of such significance.
Suffering from diagnosed generalised anxiety, mild panic attacks and general hormonal disposition of a teenager. Was treated for GAD with Veneforlaxine / Effexor XL 150mg per day for the duration of one year. Also at this point I had history of regular heavy Cannabis smoking as well as Tobacco.
Headaches became noticeable while studying at college, found they were random, stress/concentration induced, and found instant relief upon smoking cannabis or simply relaxing at home in evenings. Headaches gradually became more frequent over time, lasting slightly longer periods.
Continued smoking of cannabis even with mild tension type headaches present, which presented no significantly troubling pain at time or interference.
In between this time of 2003-2004, I strongly note I also went on a family holiday to Turkey, was very happy until we went scuba diving and experienced minor but significant pressure pain upon trying to equalise for the first time under water, also shortly after contracted a fever and cold affecting my sinuses. On flight back from Turkey in mid air I was very suddenly hit by extremely severe and extremely violent sinus like pain, which was sharp intense and throbbing, caused a drama on plane as crew tried to place ice directly on my face and head. Pain did not relieve until we landed, and I was left with a moderate lingering pain in my sinus
locations and bilaterally on my temples, which lasted a gruelling week or two but subsided.
Soon after or during this experience back at college I began to experience more frequent and severe daily tension type headaches, which did disturb my mood, hunger and especially any ability to focus or concentrate. Soon after I experienced my first ever severe, Migraine type attack, which I am quite sure was triggered or aggravated by the smoking of cannabis. This severe and disabling Migraine left me unable to leave the home for almost 2 weeks exactly 13 days, and I was left with strong light and noise sensitivity which continued on. I later experienced one final severe Migraine attack of same nature.
Possibly a month after this 1st Migraine attack I then experienced one further attack, again triggered or aggravated by the onset of smoking Cannabis. This attack was more severe and crippling and again lasted almost 14 days exact. After this attack I immediately visited my first ever Neurologist who immediately put me onto the following drug treatments.
- Amitritptyline with Sodium Valporate
- Dothiepin with Epillim-Chrono
I then went back onto Amitritptyline, which was continued with Topiramate, after other drugs had no effect. In result all had no significant effect on any of my pain symptoms.
My symptoms at this stage were agonising daily, constant headaches. Pain
location was Bilateral, very strong on Temporal
location and spread very painfully over Sinus
locations of face across eyebrows, across forehead, around ears, and around my cheeks, also had pain over entire Scalp and stiff, sore Neck muscles.
From this point onwards for 2 long gruelling and extremely painful years, my mother and I went from one neurologist to the next seeking an answer, or a theory for the cause, and I saw myself treated with dozens of different drugs, and more confusingly going away with new and different new diagnoses.
Many of the diagnoses ranged from:
- Chronic Daily Headache
- Tension Type Headache
- Nerve Damage Sensitisation
- Idiopathic Persistent Facial Pain
- Chronic Sinusitis Pain
- New Persistent Daily Headache
- TMJ Disorder
- Low C.S.F Headache
- Transformed Migraine
Treatments ranged from: more Amitriptyline, Increased Topiramate, Small doses of Clonazeapam, 5-day trial of intensive Prednisone, Propananol, Antibiotics, Pregabalin, Valium and currently Nuelin SR.
Also for at least 2 years went through just a sample of the following:
CBT Therapy, Pain Management, Visualisation
Hypnotherapy, Chraneopathic Therapy, Chiropractic Treatment
Accupuncture, Spiritual and Faith Healing, Homeopathic Treatment
Chinese Herbal Treatment, Postural Therap
During this slow and gruelling process, there was not one drug I was tried on which significantly eased or help me deal with the mental and physical pain I was experiencing violently on a constant and daily basis 365 days a year, and to make matters of worse I left endless clinics all over London with new notions and promises of relief and an answer to the ongoing problem.
Amitriptyline over time provided and still does a 10-20% help with coping with the mental anguish and depression but does not enable to me live any form or type of normal life. Valium also provides very short term relief to my pain by suppressing my central nervous system, alike as excess Alcohol also does and both have similar effects on me.
After approximately suffering for around 2 years solidly with Headache Pain, I gradually developed in the process of trying all kinds of products a very strong Tingling, Prickling, Itching, Burning sensation over my Scalp. This soon spread to my face, causing a strong and chronic Flushing issue where I had very dark rashes appear. This worsened as my condition has, and spread an excruciating constant Burning sensation of the same nature over my entire Scalp, effecting my hair, making my scalp sensitive to every irritant and my skin and hair in general unbearable and constantly aggravated. We have tried so many solutions for these symptoms alone the list doesn’t stop.
The condition inevitably has worsened over time, there have been small periods of relief, but nothing has significantly improved. I am more worried for the constant and developing pains emitting from my eyes, the shooting pains behind my eyes and more importantly my general balance and ability to safely drive or do any daily tasks as normal people would.
Below is a list of a few of the Treatments I have undertaken either via the guidance of Neurologists or Specialists:
- 5 x Occipital Nerve Block Injections
- 1 x Set of Super Orbital Nerve Block Injections
- 5 Day Intravenous D.H.E treatment
- 3 x Caffeine Infusions
- 2 x Botoxulin Injection Treatments
- Lumbar Puncture
- Wisdom teeth removal
- (Future possibility) Stimulator Device implant
Current Symptoms / Last Final Suggestions
- Constant heavy dull throbbing entire head
- Heavy agonising pressure over entire head
- Severe constant Allodynia pain of entire scalp, hair and face
- Throbbing, intense pains behind eyes and across sinuses
- Constant dehydration, dry skin, scalp hair, eyes, mouth
- Balance and Postural movements worsen pain, especially bending over
- Tight muscles all over face, scalp and neck
Prior Relevant Incidents / Illnesses as a Child:
Severe Whiplash Injury
Minor car crashes
Chronic Fatigue Syndrome
Post Edited (SPEEDSNEED) : 10/18/2012 2:31:32 PM (GMT-6)