Hi Vickabee and Lady Nebula!!! and everyone else with HM!!!!
I too have HM and had them for 3 years, i too get fully paralysed from my neck down to my feet ( can´t move at all ) but always on my right side.
i too have had numbness for on and on for the past 10 years, and i have a bunch of stroke like symptoms too. I have written much about them
in the other Topic here called " Hemiplegic Migraines "
Anyhow when i have the numbness or the paralysis i can feel when the doctors do the stick test so everything is normal in that way. Often i have
back and neck pain but that isn´t coming from my HM is really from my neck and back they are in bad condition with nerve damage and so on.....
I was wondering Vickabee if any kind of test is done, to rule out that your daughters pain and weakness not actually come from back or neck??
I have good medication for the auras that have helped me from having 3-5 attacks per week to now only 3-6 per month, this summer i actually had
a full month without any attack so....... i am grateful for that, there is much good medication out there for us with HM!!!
I also have the migraine headache many time a week ( without the aura ) and with that i have problems finding medication for , but with my great
neuro we are trying to find that too.
Hope you get some help soon and get some relife!!
P.s there is many neuros out there who has never seen a case of HM, so if you don´t have a real migraine specialist, you should have one!!
Hugs from Sweden