MIGRAINE WITH AURA & NO SEVERE HEADACHE

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happyodie
New Member


Date Joined Aug 2008
Total Posts : 2
   Posted 8/16/2008 8:06 PM (GMT -7)   
Hi everyone.  I have had migraine with auras for nearly 35 years! Iam 57.  Sometimes a few a year and sometimes 2-4 a month. As I have gotten older I get the aura for about 20 mintues and only a very vague headache. I just get scared because I have heard you could have a stroke.  I don't take any meds - just 10mg paxil daily.  The neurologist has me taking a baby aspirin everyday - not sure why.  Anyway - does anyone else experience the migraine like this?

Looper13
New Member


Date Joined Aug 2008
Total Posts : 8
   Posted 8/18/2008 9:53 AM (GMT -7)   
I do not experience that but I find that interesting.  Every single aura I have ever had has always been followed by a migraine headache.  I am a lifetime migraine sufferer too.  My questions for you are do you sometimes get a migraine still after an aura and secondly, was the aura without headache a more recent development or has it always been that way?

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 8/25/2008 12:14 PM (GMT -7)   
I have many different types, but among them is: aura with migraine, aura without migraine. I've had the aura without for a long time; my neuro made sure I had the mri's and mra's and I'm okay...it's just another form of this stuff. The aspirin is probably just a preventative, it certainly won't hurt us especially at the age that you and I are at.

If you are concerned and haven't had an mri or mra, I would ask your Dr. to schedule them for you.

Janice

britmex
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 8/31/2008 10:46 PM (GMT -7)   
Hi,I get auras without headaches. I started getting them back in 1990, after my first child, i was 25. I was so scared and thought i had a clot. I had MRI's and i was diagnosed with vascular migraine. I got them maybe once a year. I am now 43, and last July the pattern changed and i was getting them weekly, which really freaked me out. They have now gone to monthly. I wonder if there is a hormone issue. I am not on meds. I get a lot of visual symptoms, starting with a blind spot, then shapes spinning in my vision, like a kaleidascope, it can last up to an hour. I sometimes get a vague headache after, but nothing major. I did used to suffer with bad migraines with pain and nausea but NO visual symptoms with them, now it has switched. It still freaks me out and makes me very anxous during and after. I wonder if my sight will come back fully, if i will stroke. It makes me loose a bit of self confidence after, because i worry if it happens while i am out driving or alone with my kids shopping. I have been checked by a neurologist, opthalmologist and they all say it is a classic migraine with aura and no pain?????
http://www.allaboutvision.com/conditions/ocular-migraine.htm  Check this site out, it explains it pretty good, and helped me quite a bit. Would love to hear other people's experiences with this, maybe if we all hear about others, it will alleviate some of our worry.

Socality
New Member


Date Joined Sep 2008
Total Posts : 2
   Posted 9/8/2008 1:45 AM (GMT -7)   
Hey,

Yes, I get the auras (prodomes), from mild to very severe at times, but never (knock on wood) the headache. This is not as uncommon as the pros might want you to think.

I had my first one in 2002 which coincides with when I started taking Effexor for depression. Very scary when you don't know what’s happening. I had an MRI and saw an ophthalmologist shortly after - - both clean reports. This leads me to believe that mine were brought on by the SSRI's.

Migraine auras are now a permanent part of my life and the docs have shrugged their shoulders. I can't make them disappear, but I can limit them by eati8ng first thing in the morning, taking Ibuprofen and a low dose of aspirin first thing in the morning and throughout the day as-needed. At their mildest, (A) they just make me ultra sensitive to light. Mid-range (B) includes jagged colored lights and nausea. At their most severe (C), all of the above accompanied by confusion and what I call "noisy head". When I get a (C), the best thing for me to do is take Ibuprofen and lay down for a nap. If you get a (C) version, my advice would be to stay in familiar surroundings and definitely not to drive. If you get scared, call your spouse or a close friend as a touch-stone.

The hangover from a (B) or (C) lasts through the next day and consists of tiredness, weak limbs and a feeling that I am thinking-through-mud.

Do a Google search on migraine auras and you will discover a lot of interesting things as they have been around from first recorded history. Research is being done now to discover if migraines and migraine auras can cause or are causing brain damage.

I wish the pros had more info than they do. It seems like those of us who suffer from these are so often left on our own to find our own way. That's why forums such as this are so helpful.

britmex
New Member


Date Joined Jun 2008
Total Posts : 10
   Posted 9/8/2008 10:47 PM (GMT -7)   

 

  Hi, Thanks for your reply. You are right, it is really helpful and somewhat comforting to know that you are not alone. There is not a whole lot of help out there, especially if you don't have the painful migraine to treat. I worry about the potential increased risk for a stroke or brain damage?????  Mine do come in different severities also, and the time they last, anywhere from 10mins to almost an hour, which is really scary. My spouse is really supportive, but doesn't fully understand, how could anyone, who doesn't get them. I feel washed out afterwards, like i am in a fog, and worry for the next few days if it is going to come back. It is funny that i am having them so much more frequently, but can't seem to get used to and become at ease with the symptoms, they really scare me. I think the guy who wrote Alice in Wonderland, Lewis Carroll, had these, they say that is where he got his ideas for all the colours and imagery in that book/movie. Hopefully people will keep writing their input on this weird phenemona [sp]

 

 

 


momto3
Veteran Member


Date Joined Nov 2006
Total Posts : 1331
   Posted 9/9/2008 7:17 AM (GMT -7)   
Hi there,
 
Yes, I get these and also had them checked out by a neuro..I take Topamax and as long as I take it, I'm fine.  Without the Topamax to keep them at bay, I get them too frequently, (daily) even while driving. I was also worried when I first started getting the occular migraines but they are just migraines and some are fortunate to have a mechanism in place that shuts down before the pain sets in.

Baybreeze
Regular Member


Date Joined Oct 2005
Total Posts : 315
   Posted 9/19/2008 11:00 AM (GMT -7)   

Hi,

I have had migraine aura & prodromes WITHOUT headache for a long time. Mine started out many years ago one day with the flashing, zig zag lights, seeing stars, feeling funny, and my vision started going dark to the sides. That scared me, so I went to an eye doc who said nothing was wrong with my eyes, but said I probably had migraines without headache. The only triggers I've found are different lights, or quick flashes of light, different kinds of patterns (like houndstooth, or like black or dark blue and white striped clothing, etc...) Sometimes just while watching tv, a bright color will come on and that will set my auras off. I get all sorts of visual symptoms, but I also get ear ringing or I kind of lose hearing on & off in or or both ears while it's happening. And many times I get nausea and sudden vomiting, feeling extremely spacy and sleepy, sometimes I smell weird things very strongly that no one else smells. LIke one day driving home on the  parkway, I suddenly started smelling Flintstone vitamins! LOL Or I smell burning or other strong odors. Since last summer, though...i suddenly started getting the actual headache afterwards on several occassions, though I don't get it all the time. And one day I got a real bad aura, at least I think that's what it was....(I lost my job, so I got a grant to go back to school)..I was in class, close to my teacher, as it was a small room. She was talking, then suddenly everything looked strange to each side of her and I had a big problem focusing on her or anything else. Then I started feeling spacy, though not quite dizzy and not quite spinning. And I heard her talking (and classmates talking) but it just wouldnt sink in. I did not, however, have the usual flashing & zig zag lines, but the light in the room seemed like it was getting brighter & brighter and things got sort of fuzzy. Then my teacher suddenly asked if I was alright and everyone was looking at me (how humiliating).....my teacher & classmates told me I had looked white as a ghost. They thought I was going to pass out. So she sat me in her nice big cozy chair & put my feet up, sent everyone else out and had me stay in there. They almost called an ambulance, but i said NOOOOOOOOOOO!!! One of my teachers is a nurse, so they sent her in with me and she was concerned. But she took my blood pressure and it was very high, like 158/98. I'd never had pressure that high before. So I sat there for a few hours b/c I didn't want to go home and then said I would just go to the rest of my classes. I slowly started feeling a little better, though I felt soo tired. But even the next day, I still felt a bit off. Then a few days later it happened again, but only briefly....then went away.

And last summer my migraines started increasing in frequency suddenly. It all happened, along with other pains and problems, when steroids wore off. I feel great on steroids, but when they wear off, I get awful problems. I started getting migraines with and without auras almost every day for a while. I told my Rheum, who then prescribed Imitrex..and that works great for me. I just cannot see a neuro right now b/c I'm unemployed and the basic insurance I have has a $500 yearly cap on any diagnostic tests, which I've already met. So I cannot pay for any testing. But I just wanted to share my story with you about having just the auras for about 15 years or so. It was last summer that I started getting some with the headache.

I actually just read yesterday about some studies that were done on people with migraines with auras. Unfortunately, the studies did show an increased risk of stroke for folks who have migraine with the aura. (It did not show the risk increase for folks without the aura). Apparently many researchers thought it was due to plaque build up on arteries, but their current studies showed that was not the case. Now they are saying it seems more related to blood clots in the veins. So..that would make sense then, that the neuro has you taking baby aspirin now, since it can be used to prevent blood clots. Of course this is info I read from a medical study, I certainly can't say anything medical about it myself or say for sure these studies are right, but one never knows. I am now wondering if I should just take it upon myself to take those baby aspirins.  But it sounds like the doc might be doing the right thing for you at this time...

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