I have migraines and neuropathy usually down my right side. Since starting neurontin the neuropathy is usually under control except for lately, probably need to up the dose again... Migraines are generally about half the month and partially relieved by triptans most of the time but not fully, and since I only get 6 a month with a fifty buck copay basically I have to live with migraines, I don't get relief. For a couple months of the year I can go a couple weeks straight migraine free but not lately
My parents moved into town and are all worried about me, I guess I don't think a lot about what is going on or I'd get real depressed and even suicidal. Better not to think. So they bought me "migraines for dummies" Ha ha ha and are wanting to know why I twist up during episodes. My body usually contorts on the side of the migraine, and having joint hypermobility I can really get contorted without thinking about it. People stare at me too, and if I try to control it I still limp. It does not hurt to twist up, I rather find it relieves the pain somewhat in all the joints, which feel like they are sort of like about to explode, including my teeth. The more I press on my head and contort my joints the better it feels so I can will myself to stop if people are bugging me about it but I involuntarily or unconcsiously start doing it again a minute later. I get real confused during attacks, left is right and all kinds of embarrassing mistakes. Does anyone else do this? I have seen some excellent and more crappy doctors, not much help so far and am not too hopeful. I get my retina checked for MS and prescribed another couple thousand dollars of physical therapy, and that is about it.
There is a lot of arthritis in the family but not much else. High blood pressure,, emphysema. Nothing special. Maybe a lot of depression.
Anyone else get this kind of weird stuff?