To Cici and Kim - thank you both for your replies to my post -
Update: My daughter had the MRI w/contrast on Wednesday (as I said in my post from Monday), and Friday I spoke with the doctor and he said he was calling with good news - they had 3 radiologists look at the MRI w/contrast and they all said normal - they did, however, see scar tissue (?) - he asked me if I remembered her ever having a fall or getting an infection of some sort when she was younger - off the top of my head I couldn't think of anything - he said those types of things would show up as scar tissue on the brain - he said they also refer to it in the report as "non-specific white matter", and that the final report will say to follow-up in 3-6 months with doing another MRI to make sure there are no changes - we see a neurologist on Wednesday - I am hopeful and anxious at the same time that she will be able to help us get to the bottom of her headaches -
After speaking to the dr, later in the day, I spoke to my husband, and we were remember her learning to walk, having chicken pox at 3 years old, etc. I suppose any of those things could have caused scar tissue!?
Kim, since you are an RN, I am wondering if you might be able to answer a couple questions I have -
1. Why would scar tissue change over time (regarding the follow-up MRI in 3-6 months)
2. Could a tumor be mistaken for scar tissue or are they 2 obviously different things on an MRI w/contrast?
(FYI, I deal with health anxiety, so this has been a roller coaster for me these past 2 weeks!)
Also, I'm starting to think these headaches aren't migraines, because she is getting them daily and I'm under the impression from migraine sufferers I've talked to that they don't get them daily, even though a migraine itself can last 2-3 days. Also, she has been able to do her daily activities without interruption, ie., working full-time, going to dinner with friends or her brother and sister, etc. ??? I am concerned about
the fact that the propanolol (a preventative) doesn't seem to be working at all, but I am not going to mentally "throw in the towel", as this is the first med they have tried, and I'm sure there are many, many more out there to try for her.
Any thoughts would be great!