How do you cope with hemiplegic migraines? I'm in misery!

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New Member

Date Joined Dec 2008
Total Posts : 1
   Posted 12/11/2008 7:36 PM (GMT -6)   
The dr thinks I am having hemiplegic migraines.  I have experiences a few episodes of extreem one sided distinct headaches with numbness to left side of face, mouth, tongue, throat, arm, and left leg weakness. I have headaches everyday yet these are very different. I have had two very horrible attacks of vertigo in which I'm like a drunk laying on the comode rim vomiting, though other times the vertigo has not been as severe.  The muscles in my head, neck, shoulders, and upper bach tighten in a death grip during the attacks.  I have undergone lots of testing and have started on a low dose topamax this week and have been taking tizanidine for a while for the muscle spasms. I have had the current attack for a week so far.  I'm in misery! Any ideas or suggestions on ways you have found to cope? 
I had never even heard of this type of migraine before.  I started researching it & the info I found says it starts in childhood & ceaces in adulthood?  I'm 38 and have been dealing with this a little over a year.

Veteran Member

Date Joined Oct 2008
Total Posts : 2024
   Posted 12/12/2008 3:32 PM (GMT -6)   
I have headaches from TMJ. Ice helps me, maybe try that. If not you can try moist heat. Rub some peppermint oil on your head or where the headache is. Don't get it in your eyes. Have you been assessed by your doctor or neurologist??
I know it's terrible having constant headaches. I have been suffering for years.

Good luck

New Member

Date Joined Dec 2008
Total Posts : 3
   Posted 12/25/2008 3:07 AM (GMT -6)   


I have suffered from migraines for over 35 years, I do have the one sided numbness, face, tongue,ect.  I have been to several doctors over the years and this is what I have found out.  I had a PFO (hole in the heart), until two weeks ago.  I was diagnosed several years ago with TIA's(mini strokes), so that could be your problem.  Ask your doctor to do an echocardiogram and a bubble study to see if you have a PFO (patent foramen ovale), if so you may want to have it closed, if your problem is strokes.  I waited for years and suffered and finally had all of this done and feel so much better now. I did have the PFO surgery two weeks ago, and other than a small headache, I feel much better.  Hope this helps.  Take care.


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