Migraine aura without headache.....scary!

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yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 2/11/2009 2:06 PM (GMT -7)   
This is my first post in this category. Many years ago while I was recovering from a severe flare from Crohn's disease I woke up at 2am and ate some cream cheese and crackers then went back to bed. On my way back I noticed a small flicker in my peripheal vision and though it may be from the fridge light. I had just shut the fridge door in the dark so that made sense. Over the next few minutes it had grown in size and into a half circle and then was really flickering in multiple colors. It almost looked electric. I panicked! I though I was having a stroke. I had no other symtoms except this aura. I got dressed in my panic and had intended to go straight to the emergency room. It finally disappeared out into my peripheal vision like nothing ever happened. Over the next 20 years I have had many of them and learned what they are. How many of you have experienced these and is there any kind of treatment for them. Also, I have read that they aren't dangerous. Is that true? I don't panic when I have them now but they make me feel uneasy.
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


Tirzah
Veteran Member


Date Joined Jul 2008
Total Posts : 2315
   Posted 2/11/2009 3:04 PM (GMT -7)   
Tony,
I don't usually post in this category b/c my migraines are well controlled. I also get migraines without headache. Besides the visual disturbances, I would get extremely nauseous and dizzy to the point I would fall over. I went through an extensive GI work-up that was completely normal before I went to neurologist for dizziness & finally got diagnosed. My neuro treated them the same way as regular migraine headaches -- preventative medications (currently I'm on Lyrica) and abortive medications (I take Imitrex -- pills for normal ones & IM injections for the really bad ones). I do occasionally get a regular migraine with aura, but I get the "silent migraines" more frequently -- though now they don't come as much & when they do I get them treated right away so they're no longer a problem for me.

Good luck finding treatment! I hope you find something that works as well for you as what I have.

blessings,
frances

SmurfyShadow
Veteran Member


Date Joined Dec 2008
Total Posts : 2386
   Posted 2/11/2009 3:05 PM (GMT -7)   
Auras are wierd at times. Only thing I can think of is to ask a neurologist about preventive meds.
 
Smurfy Shadow
 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux
 
Medications: CellCept, Prednisone, Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 2/12/2009 5:35 PM (GMT -7)   
Hi Tony; aura without migraine is a normally benign condition and another form of migraine. Unless they occur on a frequent basis (read multiples during the week) there is generally no use in treating them. Your description is fairly common and they normally are gone in 20 to 30 minutes, which makes treating them useless considering it takes 20 minutes for meds to start kicking in.

Saying that, there are those who have a more severe form and for them treating them may help, but for the occasional aura without migraine, just sit back and watch the show! For me, they're more of a nuisance than anything, because it disturbs my vision for that period of time and I just have to wait it out, but compared to my other types of migraine, not too bad!

The only caution I would add, is if you have an increase in the frequency or the length of the aura, then you'll want to check with your neuro; like my other headaches, I include these in my headache diary to record and to spot any trends.
Janice

yellowfin43
Regular Member


Date Joined Aug 2008
Total Posts : 305
   Posted 2/13/2009 7:19 AM (GMT -7)   
Thanks Janice, I had one 3 days in a row once while on business in Atlanta but normally I only have 2 or 3 a year
Crohns 30 years. Ileostomy for 15 years. Symptom free for 14 years until 6 months ago. Now on Remicade and iron. Feeling like a champ!
God Bless. Tony


Pete12
New Member


Date Joined Jul 2008
Total Posts : 7
   Posted 2/17/2009 12:01 PM (GMT -7)   
I had my first one at around age 30. It scared me. i went right to the eye doctor. Nothing wrong with my eyes.
In fact, nobody really knew what it was but wasn't concerned. I got it maybe a few times a year when faced with a bright light (like you said with your refrigerator light). It would always last about 20 minutes. I hated it. Anyway, I started getting migraines in my late 40's, never at the time of the aura though. It was like they were two separate things. At age 50 I had a stroke. I didn't know it was a stroke at the time because it was kind of like the aura except covered a larger area for maybe 30 seconds. I was having a horrible migraine and drove myself to the doctor one day. They did an MRI and discovered the stroke that had happened that day (the aura). Anyway, from the time I had the stroke I have never had another aura--just the pain from migraine. It was like the stroke took care of the vessel contributing to the aura. Anyway, I would rather have the aura any day than pain. I wouldn't listen to anyone saying migraines are not dangerous. I do everything to avoid them. I think the more people put up with them, the more frequent they get. I'm glad you do not have pain and hope you do not in the future.

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/23/2009 7:48 PM (GMT -7)   
My 18yo stepdaughter has suffered with migraines for yrs. Around Christmas time she experienced a GI bug. Since then she has had visual disturbances daily. She was diagnosed with Palinopsia ? etiology. She had MRI's, MRA's, EEG's all neg. She saw a neuro-opthamologist without much success. I read that persistent migraine aura can cause palinopsia. Does anyone have experience with this??? Treatment?? I read that some people have tried Tegretol and Neurontin with some success. Acupuncture? Help!!!!

feelinghelpless
New Member


Date Joined Feb 2009
Total Posts : 8
   Posted 2/24/2009 9:38 AM (GMT -7)   
Hey everyone. I was online for treatment of persistent migraine aura. A canadian neurologist had successful treatment with Topamax, Lamictal and Valproate. Auras gone!!! Did any of you try these meds?? I'm going to ask a neurologist to try Topamax first on my stepdaughter.

cared4
New Member


Date Joined Oct 2009
Total Posts : 1
   Posted 10/28/2009 8:34 PM (GMT -7)   
feelinghelpless and others,

Visual auras happen for different reasons in different people and at different levels of severity. Some auras are related to migraines, some are considered a form of epilepsy. LdyJane above gives good advice: Whatever the cause, depending on the severity, frequency and problems they cause in your life, visual auras do not necessarily need to be treated or, if treated, entirely eliminated. Personally, I've been diagnosed with epilepsy, and my doctors treat my auras with meds becase my auras have occasionally been the trigger to more severe seizures (don't panic--that's just me). I still experience some auras--sometimes they last just a few seconds--but they're at a level where I'd rather live with them than increase my medications and suffer increased side effects (my doctors agree). Helpless: I'd be careful about just telling a neurologist exactly what medication you want your stepdaughter to be put on. First, he/she is going to want to do his own diagnosis (Palinopsia etiology might not be his explanation). Second, making choices between the various drugs you mention (all of which are sometimes used for seizures)--and there are more--can be very complex, and the side effects can be different for each individual. (The only one I'd comment on for sure is Tegretol, which is very effective but somewhat outdated, as its side effects are pretty strong (then again, I was on a helluva lot of it when I tried it years ago).) Also, he might even recommend that meds are not the right way to go. Finally--and I hope I'm not being presumptuous here--make sure to focus on the fears and needs of your stepdaughter, rather than your own fears. I know when I was her age, my dad found my auras to be a lot more frightening than I did. For me, the side effects of the medications changed my life more than the auras themselves did. So I had to find a balance between reducing the auras with meds and minimizing side effects. But this balance was something that my father couldn't simply find for me--these auras were a strange, mysterious thing for him, and, understandably, he just wanted them to go away! Hopefully, too, you will find a neurologist that will listen to her. Unfortunately, neurologists are a specialty not known for their people skills, so it may be difficult--and you do want someone smart, not just nice. If all you can find is someone smart, just make sure that your daughter always speaks her mind and insists that her subjective point of view be considered when decisions are made about her medication treatment, if that's the way it ends up going. Good luck!

linda v
New Member


Date Joined Nov 2013
Total Posts : 1
   Posted 11/22/2013 8:27 AM (GMT -7)   
hi i have had migraine now in various forms for 40 yrs unusual type was having shivers of an oncoming fever in fact was a migraine at present have silent type with aura the aura lasting approx 20 mins blind spot then the coloured zigzags scary even now and feel apprehensive untill this goes also have been woken in the middle of night 4 times in a row with aura migraine really scary anyone out there ypu are not alone
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