Neurontin or Topomax??? which is better

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jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/18/2009 8:12 PM (GMT -7)   
Hi everyone, I am usually over on the lupus forum but wanted to jump over here and ask you all a question.

I've had a headache 3-4 days a week since the middle of January. Last Monday 2/9 one came on and I've had one everyday since (except when I took meds). I've had a CT scan and it was clear. I saw a neuro and he first put me on Inderal and I had terrible side effects (severe abdominal pain) so I stopped it, now he wants me to try neurontin and if that doesn't work, topomax.

Any suggestions?
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


kymark
Regular Member


Date Joined Dec 2005
Total Posts : 86
   Posted 2/21/2009 8:54 PM (GMT -7)   
jhmom,

That sounds like a good plan. Neurontin had fewer side effects for me -- as you'll see if you look at past posts here, Topomax has many side effects for most people, but many folks have great success with it. It's a crap shoot as to which will help you more, so you might as well go with the one with fewer side effects first.

LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 2/21/2009 8:59 PM (GMT -7)   
Hi jhmom. Topomax does a very good job as a preventative as does neurontin, but it depends on the type of migraine you're having too. Neurontin does wonders for nerve pain and can be a good preventative, but I the dosage they want me at causes ankle swelling, reduce kidney function and weight gain. Topomax did wonders for my headaches, but I had a severe reaction (respiratory distress syndrome); instead of topomax I take zonegran, which is similar with fewer side effects.

Try the Neurontin, watch your ankles for swelling; 600 mg was working for me, but the dosage was to high and caused problems. What abortives are you on? I see you're on darvocet; darvocet like motrin, causes rebound and in a hurry. How often are you taking that?

Hope you feel better soon!
Janice

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/22/2009 6:56 PM (GMT -7)   
Thank you kymark & Janice,

I rarely take darvocet, only around that time of the month and for headaches now and then. Yesterday I took 2 for a bad headache and it took so long to work. Thank you for the info on neurontin, I will keep an eye on any swelling.
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


korbnep
Regular Member


Date Joined May 2007
Total Posts : 327
   Posted 2/24/2009 12:31 PM (GMT -7)   
In response to the reply that they're good for different types of headache--that's absolutely right. I just wanted to add that for Chronic Daily Headache, especially New Daily Persistent Headache, topamax and gabapentin (Neurontin) are considered the most effective treatments for problems that we know very little about how to treat. So I hope that inspires confidence--they can be very effective. Also, CDH is officially defined as having greater than 15 headaches a month, though it's sometimes means actually every day.

Still, good luck!

Ben
DX: NDPH, Recovered CRPS
RX: Lamictal, Provigil, Clonazepam, Ambien CR, Emsam, Namenda, Oxycontin, Oxycodone
PRN: Haloperidol, Zyprexa, Lodine, Zofran, Skelaxin


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/24/2009 6:29 PM (GMT -7)   
Thank you Ben, I think I will go ahead and start the neurontin to see how it works. Does it usually kick in pretty quick or is it something that takes time to get in your system to work properly?
Stacie
Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Lupus, Sjogrens, Raynaud's, Hashimoto's and Celiac Disease
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Folgard OS (B12), Vitamin D-50,000 IU, Darvocet (as needed) and magic mouthwash (for mouth sores)


HemiL
Regular Member


Date Joined Jun 2010
Total Posts : 33
   Posted 6/24/2010 1:24 PM (GMT -7)   
Neurontin was not a very good medication option for me. I was on it for only 2 1/2 months to treat my hemiplegic migraines (it was the first medication I ever took) and I gained 40 pounds while on Neurontin. It did take away the neuropathic pain that I was experiencing but did nothing for my other migraine symptoms. It also caused a lot of mental confusion and had me really spaced out.
Also coming off of neurontin was one of the worst things I have gone through in my life and I was only on it for approximately 2 1/2- 3 months. Stomach cramps, sleeping problems. Etc.

Topomax was a much better option overall, though I do have some side effects. They include weight loss (not really a bad one :-), decrease in sweat production, and visual side effects, which occurred about 4 months after taking the medication. But Topomax did work for me, for a while, so I was pleased despite the side effects.

Post Edited (HemiL) : 9/6/2010 10:06:08 AM (GMT-6)

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