It's hard to believe we are all suffering from the same headaches, have seen many doctors, done all kinds of treatments and taken tons of meds and no one has an answer to our pain.
I am a 52 year old female, part time nurse but on my second sick leave from work due to the headaches. My headaches started ten years ago. Right now it has been over two years of constant pain, 10/10, every minute of every day. I have been mostly in bed with ice packs on my head to try to keep my sanity. I am very depressed and I can't really see an end to the pain. It consumes my life. I pray all the time for strength and courage to continue this fight. I am my own advocate and I continue my fight to find an answer to my painful life. Thank God I have an extremely supportive husband. Right now i am looking into seeing an iridologist. Please google this and tell me what you think. My appt is on Wed. so i will report back with the findings. I have a friend who also has had ten years of headaches and started feeling better after seeing this doctor. So i am anxious to see him this week.
Just to let you know, you can also have a look on the chronic pain forum. It's a great bunch of people with differents pain but of the chronic nature and you can get so much support there. come on over and check us out. I love the family of friends I have there. You can vent all you want and you will get tons of support.
I too am having a heart work up done to make sure I do not have a PFO. I will talk to my doc about the CSF leak as well.
Talk soon. Wishing you all a low pain day. Please try ice packs for your pain, they sure help me get thru the day.
Chronic, severe and continuous bilateral temporal headaches since April 2000.
Poor prognosis, seen thousands of doctors, been on dozens of meds and tried all forms of treatment with no success.
May 2010 to present taking DM, dextromethorphan, 4x/day, to continue to reset the receptors, weaning off of oxycodone as it did not help with my pain, pain continues to be terrible every minute of every day!
Feb to end of April 2010:3 cycles of IV Ketamine infusion via a PICC line and pump at home, this was to try to break the pain cycle by resetting the receptors
Meds: oxycodone for breakthrough, cymbalta, vitamin D, B12, magnesium, omega 3, melatonin
Profession: Part time registered nurse on Long term disability and applying for permanent disability thru CPP
52 yrs old, female, married, two boys 19 & 21, live in Ottawa, Ontario, Canada