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Posted 3/13/2009 5:42 PM (GMT -6)
Have been suffering since 2000. Was treated for a tmj disorder. Headaches got better, coming just now and again. Now the headaches TMJ dentist to decompress the joint space using a splint and then another splint to relax the muscles but no changes in the headaches. Waiting to get an appt with an orofacial pain dr. Have been off work since Oct. Mostly have to be in bed with ice on my head as the pain is so terrible. Does anyone have any suggestions as to what else I can try or who I could see to find out the cause of these headaches. I can't live my life like this.
Posted 3/13/2009 6:00 PM (GMT -6)

tmjpain,

I am so sorry for what you are suffering through. I'm not usually on this site and so I don't know a great deal about migaines. I have heard that botox injections can sometimes reduce the engagement of nerves. I may be way off and I apolgise if I am, but it may be worth a look in to improve your quality of life.

Co-moderator Anxiety/Panic
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Posted 3/13/2009 6:10 PM (GMT -6)

I had botox injections done twice with no relief.

Thanks for the suggestion.

Posted 3/13/2009 10:47 PM (GMT -6)

tmjpain,

Hi there! Sorry for the delay in getting to your message.

If you dont mind, give us a little more information. You mentioned you tried botox and are working with TMJ issues, have you visited a neurologist/headache specialist or had any tests done?

Headaches can be so vague and hard to diagnosis. Im hoping that maybe with some more information we can get you pointed in the right direction.

 

 

Sara-Migraine/Headache Forum Moderator
 
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Posted 3/14/2009 2:33 PM (GMT -6)

I have seen neurologist, rheumatologist,chiro, physio, craniosacral tx, head, neck and jaw clinic, massage, acupunc, homeop.,

pain specialist, tmj specialist, ENT, ct scan and mri negative. Did braces, appliances to correct the space in the tmj as it was compressed, There's probably more but can't think right now. Waiting now to get an appt. with an orofacial pain dr.

Posted 3/14/2009 2:56 PM (GMT -6)
So did the HAs get better and then come back. Or are they better and you want them completely gone. Have you tried antidepressants? I am on one and it helped with the tightness in my jaw that i got as a result of my csf leak. Prob best to avoid if you can but if you want more relief i am sure they will help somehow, i.e at least you wont think about it as much. I also got a mouthpiece made to help with my jaw tightening up. I was told that if they are not made correctly they can cause more problems. Hove you ever gotten your splint adjusted?
"God won't take me to what he can't take me through"

Posted 3/14/2009 3:20 PM (GMT -6)
The h/a left for a while and are back now since Sept 2007. They are constant now and terrible. Yes I am on an antidepressant. My splint has been a adjusted so I am balanced.
Posted 3/14/2009 3:46 PM (GMT -6)
very strange indeed. The best thing i can say is think of what happened during that period they were gone. What cahnged if anything. Lifestyle, weather, diet, excercise, meds, vitamins. I am sure you have already racked your brain with these questions but thats all ive got. If it went away for a period though i would see that as a huge positive. Hopefully it will just go away again(doesnt sound very scientific but maybe its a cyclical thing). Cherish the good days.
"God won't take me to what he can't take me through"

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