Here is the shortest version I can do - horrible headaches, every day. Doc put me on migraine medication. Didn't help. Had me take migraine + 1 vicodin - didn't help. Then had me take migraine + 2 Vicodins. Didn't help. Referred me to a neurologist. Immediately suspected CFS leak. Had me lie flat - headache went away. Ran CT's, MRI's, cisternogram with dye, and just last week a nuclear cisternogram - all negative. The doc who did my lumbar puncture this past time said that he sees a few of these a year, usually young females such as myself. He told me to ask my doc about
doing a patch just to see if it will work. I also have weird symptoms like dizziness, having trouble coming up with the right word when talking, bouts of nausea, not walking in a straight line... Just weird things. The headache itself has not gone away - it's been here for several months now. I did take my doc's advice a few weeks ago and took 5 days off work and laid flat in my bed all day and all night. For a day afterwards my head did not hurt but the headache came back the following day. When I lie on my back I get relief quickly. The only other thing I can think of is that I have a spot on my back, right along the spine that hurts. The pain isn't persistent. It comes and hurts really bad, then goes away like it was never there. For the past few days it's hurt really bad. Yesterday it was hurting and I couldn't stay on my feet very long b/c I felt like I was on a roller coaster.
Any thoughts? I feel like I'm losing my mind but I know I'm not!!! Could this possibly be a spinal thing that might require a doc who looks at those types of things?
34 year old female, Diagnosed Ulcerative Colitis 5 years ago
Current Meds: Remicade every 6 weeks, Prevacid, Lialda, Lexapro (anxiety), Synthroid, Symbalta, Sustenex, Iron, vitamins, Fish Oil