Posted 4/22/2009 6:50 AM (GMT -7)
I am so glad I found you! Like many others here, I was beginning to feel at my wit's end.
My migraine story started when I was a child. I had a couple of migraines when I was about 10 and did not have more until I was in my mid-twenties. When the headaches started up again, I had one every few months. I guess they have been gradually increasing to the point where I'd have a headache every month or two. In the past six months or so, I noticed that when I'd get a migraine I'd most always end up having two within a 24 hour period. Up to that point, I'd never really bothered to get the migraines checked out. I mentioned it casually to a couple of doctors but never did anything about it. I am lucky in that when I get the migraines, I get the aura and a headache that feels like I just want to pull out all of my teeth. However, I don't typically have all of the other nasty stuff.
At one point, a doctor gave me a sample of Imitrex but it did nothing for me. I also found that Tylenol and Advil did nothing for me so I always just rode it out and never bothered to take any medication. I didn't see the point.
about a month ago, something changed. I don't know what. I started to get two migraines a day, every day. They stopped for about a week and started up again. Then, they stopped for almost two weeks and now I've had one a day for the past three days.
When this all started a month ago, I went to my doctor. Her first response was to give me low-dose Xanax a sample of Maxalt and send me on my way, even though I told her that stress did not cause this. I really don't lead a stressful life. But, it was almost like she didn't really want to spend too much time dealing with "a headache". She didn't seem too interested in finding out why there was this sudden shift in the pattern of my headaches.
My father-in-law, a doctor, was the one who told me that I should go back to my doctor and tell her that I wanted a CAT-Scan. (Is it just me or is it weird that the patient should have to be the one to demand this sort of thing?) The radiology department said that I shouldn't have a CAT-Scan. Because of the sudden change in my headache pattern, I should have an MRI.
To make a long story slightly shorter, the MRI came back clean (YAY). I've also had bloodwork done and my eyes tested and all of those items have come back fine. We're wondering if my problem isn't due to some sort of neck strain. My doctor seemed to like that idea, said it would probably get better on its own, and pretty much left it at that. Of coures, we don't have any proof that strain is what's causing it but it's almost like she couldn't be bothered to really find out what's going on.
Now, I'm left in the place of being afraid to move. I'm afraid that if I move the wrong way, I'll trigger a migraine. I'm afraid to drive anywhere on my own because when the aura hits, I can't see. My work is suffering because of all of this. (Fortunately, I have the world's best boss and I work from home.) And, it's really hard to make people understand. My mother was telling people that I was suffering from "bad headaches." I tried to tell her that saying that a migraine is a "bad headache" is like telling somebody with a broken leg that they have a bad sprain.
I haven't been able to really even take things one day at a time. I can be feeling great one moment and in the next moment be blinded by a cruel premonition that a headache is on its way. It's like expecting the boogy man to jump out at any time, day or night.
One good thing to come from all of this is that I've found Zomig. (My insurance wouldn't cover the Maxalt.) So far, the Zomig at least helps to greatly reduce the pain. Another good thing is that I was taken off of a drug (for an unrelated condition) that could have increased my risk of stroke.
Anyway, today I'm going to see a chiropractor who practices network spinal analysis. (Not the traditional high-force chiropractic.) I'm hoping that will help. Also, when the migraine hit yesterday, my husband insisted on calling my doctor's office again. (I didn't see the point given what's happened so far.) My doctor is out of the office this week, though, so I'm actually going to get to see somebody different. Maybe this new doctor will take me a bit more seriously.
Yesterday, I was in despair. Today, I'm feeling a little more positive and am so glad that I've found others who understand - though, in many ways, I wish there weren't so many people like me.
Sorry to ramble on so. Thanks for listening.