Anyone heard of or have Persistent Idiopathic Facial Pain?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kandjmomy
Regular Member


Date Joined Mar 2009
Total Posts : 40
   Posted 5/5/2009 8:28 PM (GMT -7)   
I just found this diagnosis on the internet, and it sounds exactly like what I have. I've posted before about my headache - it's been two months since the sudden onset of intense, one-sided pain in my face, ear, temple, side of my head and part of my neck. I've tried many meds for headache and narcotics are the only thing that provide temporary relief. I'm being treated at Jeff's headache center and they've ruled out the major causes. I go back to the center later this week with all of my test results and records for Dr. Silberstein, but I was wondering about this diagnosis. Does anyone know about it, particularly treatment options, or have it?

Thanks!

summer77
New Member


Date Joined Apr 2009
Total Posts : 12
   Posted 5/11/2009 1:28 PM (GMT -7)   
I dont know much about this but wonder if it is a type of neuralgia pain from excitable  nerves. From what I have read the areas you have described are usually affected. I believe some antidepressents like nortriptaline and amitriptaline may help or one of the anti epalectics. Hope someone else has some more advice for you.

kandjmomy
Regular Member


Date Joined Mar 2009
Total Posts : 40
   Posted 5/11/2009 4:56 PM (GMT -7)   
Thanks for the response. After I posted this, I saw the doc, who found stenosis in a blood vessel on the side of my head where I have pain. They are now looking for the cause and will then discuss treatment.
I've tried nortriptyline with no success, unfortunately.
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, December 13, 2017 3:54 PM (GMT -7)
There are a total of 2,905,031 posts in 318,821 threads.
View Active Threads


Who's Online
This forum has 158188 registered members. Please welcome our newest member, DoubleChecking.
364 Guest(s), 9 Registered Member(s) are currently online.  Details
PeteZa, gmoose2, Kent M., oceanfisher58, NiceCupOfTea, Maverick6981, ByHisGrace, HopeNheal, Imbeccak