Pain and numbenss in head

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New Member

Date Joined May 2009
Total Posts : 1
   Posted 5/6/2009 6:47 PM (GMT -6)   
Hi im new here and i have had pain and numbness in the back of my head for a little over 2 years now! It all started one day i woke up and my head was hurting rally bad, i could not touch it, then it got to the point to where i had to feel it to see what was going on. Well when i felt it it was swollen on the right back side. When the swelling went down it moved to the right side above my ear area. When that swelling went down it went completely numb. Then all the sudden i started to feel like my head was going to explode. It hurt so bad. I went to the doctor to get it looked at. He sent me to MRI and it came up fine then he sent me to a nerologist. The nerologist Put me on migrain meds and it does not help. I keept telling him that so then he changed it to another migrain med. and that does not help either. The numbness in my head is constantly there but then i get the really bad pains. I can go a month with having it to where i cant get out of bed or it can be simply a day thing (bear in mind the numbness does not go away).  My eye doctor told me that i should consider lyme disease because i have my eye sight going out and he told me that normally it goes out in a pattern and mine does not. He said i sould consider lyme because he just got back from a seminar about women in my age group that have the same or similar problems with ie pain and numbness in their head and also their eyesight is going out like mine. I try to get my nerologist to listen to me but he does not seem to care. Its really hard for me to live with this. In my past history the only other time i have had a migrain is after i had a spinal tap and after giving birth to my son. I know this pain is not normal. but my problem is is actually getting someone to listen to me! Please help me!

Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 5/7/2009 5:27 AM (GMT -6)   
If your neurologist does not listen, tell him "Doctor, I really appreciate all the help you are giving me, however, you are not listening to me. Please listen or I will be forced to seek a second medical opinion." By law, you are allowed to have a second medical opinion. Not only should you seek a second opinion, I think it might be in your best interest to see a oncologist. Your MRI may have showed nothing, but you can have arthritis (which may or may not show on a mri) or lyme disease, or an auto immune disease. Your body is saying "Hey something is wrong." An oncologist is a doctor whom specializes in auto immune diseases and arthritis and other stuff. If you still dont go anywhere, go to the nearest teaching hospital (where the doctors learn to be doctors). They have the BEST medical equipment and the best technology. When I first got real sick, I was in and out of my doctor office for two weeks, finally they sent me to the hospital for a mri. That showed I had major inflamation in my eye. I was hospitalized for a week, nothing worked. They tried the best to save my eye. After a week, they gave up and discharged me with a referral to a teaching hospital that had an eye center. Its a 4 hour drive, but it was worth it. I stumped them, but they put me out did a biopsy. Results told me I had a autoimmune disease which caused Necrotizing gramultous inflamation (a rare inflamation disease) and a tumor. Some doctors just dont know what they are doing, I never gave up, and it took time but I found out what was wrong. I finished my chemo and Im in radiation now, to shrink my tumor, and they managed to keep my vision enough to where all I will need is surgery after I finish radiation to fix my vision. I wear a eye patch and the kids say "Pirate" hehe
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

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