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Veteran Member

Date Joined Dec 2004
Total Posts : 921
   Posted 6/10/2009 8:21 PM (GMT -6)   
OK, so I was thinking today we "know" each other's symptoms, medical history and pain patterns but we really don't know much about each other. Tell us a little about yourself?!
My name is Sara Angel (some people call me by my first name and others by my middle name) and I am a 28 year old wife (to Alan) and mother of Natalie Grace, who was born September 23rd, 2008.
I have always been mature well beyond my years and I don't see that changing anytime soon ha ha. My friends say I am the "Mom" of our group because I am the nurturing type and do a lot of chairty type things. I have two dogs that are my "fur-babies" one is a border collie/lab mix his name is Tyson and a beagle/dalmation named Bailey-both are spoiled rotten. I used to be a career woman but having a premature baby changed everything, now I think of nothing before her.
I'm not great at talking about myself so I will just give you a few random things and answer any questions you might have :-)
my fave color is blue
I love Starbucks' white mocha
I'm too realistic for a 'dream car'
I would rather buy something than gamble
If you ran into me on the street I would be wearing jeans and a black shirt
I have a HORRIBLE memory
I love my family
I am quick to leave behind people and things that are not good for me
Tell me a little something about can be anything you want to share!
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Regular Member

Date Joined May 2007
Total Posts : 328
   Posted 6/11/2009 10:34 AM (GMT -6)   
tysmyboo said...
I have always been mature well beyond my years and I don't see that changing anytime soon ha ha. My friends say I am the "Mom" of our group because I am the nurturing type and do a lot of chairty type things.

I'll try to share more about myself soon Sara but I think that what you wrote (especially the bit I'm quoting) is really interesting. I'm 24 and since high school I've literally been called "Dad" more than a handful of times by my circle of friends because I always take it upon myself to look after everyone. I mention this to say that I relate but also because I really think that there's a link between certain personality types and chronic pain (especially if you take psychological pain into consideration). I know this isn't a novel idea but I just see more and more that caregivers (and by extension in some ways, the thinkers--those that are most considerate out of their nature to 'consider' the world around them) often end up in these tough positions. And to make matters worse I have had an extraordinarily difficult time adjusting to being taken care of and losing my own ability to be as much of a caretaker. Have you had any of the same experiences Sara?

DX: NDPH, Recovered CRPS
RX: Lamictal, Concerta (Methylphenidate), Clonazepam, Wellbutrin XL, Namenda, Oxycontin, Oxycodone, Melatonin, Magnesium supplements.
PRN: Ketamine nasal spray, Celebrex, Migranal, Haloperidol, Zyprexa, Lodine, Zofran, Phenergan, Thorazine, DHE IM, Droperidol IM, Toradol, Reglan, Ambien CR, Provigil, and all triptans

Veteran Member

Date Joined Dec 2004
Total Posts : 921
   Posted 6/11/2009 8:02 PM (GMT -6)   
ABSOLUTELY! I am the classic type "A" headstrong personality! I have gone from being super independent (moved out REALLY early AND started working at the age of 14) to at one point, moving back in with my Mom and being on unemployment from job loss. It is a very difficult thing to have pain and watch it "take away" parts of your life.
I am now in a different situation but still see things DAILY that are different from how I used to be.
Now, I have to not plan things the way I normally would OR make deals with myself..."ok, Sara...if you can just do abc then you get to do xyz" like bribing a child! lol
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Veteran Member

Date Joined Jan 2007
Total Posts : 2446
   Posted 6/18/2009 6:51 AM (GMT -6)   
My name is Jen (from Montreal), I used to be a moderator here at HW
I'm 43, was dx with lupus and lyme. I've pretty much battled both and I'm about 95% functional again thanks to sheer will and natural healing.

My illness journey made me requestion my life and I decided to change my career and go into natural medicine.

I work full time as a corporate buyer and have been in school for the last yr working on my Naturopathic degree. I just graduated with my first degree as a Natural Health Care Consultant, but still have another 2 yrs left to get the final degree.

I love animals, love to work out, love to read and I'm a very positive person.

I've started to suffer on migraines for the last 6 yrs, then they went away, then reappeared 2 1/2 yrs ago, along with vertigo, tinnitus and hearling loss.
I'm in perimenopause so my migraines are pretty much related to my hormones.

I don't post here often, but HI to everyone :-)


Veteran Member

Date Joined Dec 2008
Total Posts : 2386
   Posted 6/18/2009 2:04 PM (GMT -6)   
I ain't saying my name cuz its in my signature hehe. I am too old, ok 28. 1 monkey and dating Masahiro. Monkey is 5 years old, I am the "extended" mother to Dakota. His biological mother lost all rights, and his dad got custody when I was dating him, but after Adam and I broke up we decided for me to stay as "Mom" so he has a better influence. I have a tough life, in fact, I am a former victim of abuse and got out. Due to that I am homeless and disabled. I have been fortunate enough to have various friends take me and let me rent a attic space or couch. My family isnt really there for me, I'm the outcast. I have a job as a nanny and I love it. I have a cat. I think I've gone crazy over the years as I keep getting sicker (and now if you heard me on the phone with the doctor, I swore I was there yesterday and it was on Tuesday lol). I'm tired of radiation and chemo messing up my memory and life. Happy that I finished just recently and waiting to find out if it worked (lets hope). I volunteer at church and Red Cross. It never fails, every day I either get so naseaus or vomit from all my illnesses and I feel like I'm going to pass out at certian points throughout the day. And I host cribbage and backgammon online at rengames as host Certified_Krazy (Hey I feel like I am hehe)
Smurfy Shadow/Desirèe 
DX: Wegener's Disease, Migraines, Diabetese Type II, PCOS, Lactose Intolerant, Benign Heart Murmer, Depression, Asthma, Asperger's Syndrome, Necrotizing Gramultous Inflamation in eye, A.D.D., Acid Reflux, Tumor Behind the Eye, Carpal Tunnel, Fibromyolgia, Clasterphobic, Arthritis
Medications:  Tri Nessa, Percocet, Metformin, Prilosec, Protonix, Zantac, Advair, Cingulair, Albuterol, Calcium + Vitamin D, Pro-Air, Pepcid, Rolaids, Zofran, Compuzeen, Refresh Plus Eye Drops  PRN: Epi-Pen, Albuterol Nebulizer, Benedryl
Undergoing Radiation Taking Lorazepam (Ativan) on Radiation Days

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