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Ele84
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/11/2009 6:09 PM (GMT -7)   
Okay.  So i didnt really know what to put this under so I just picked this one.  Im new to this site so please bear with me.  Here it goes.  I am an 18 year old female and have had fainting spells and dizziness for about 5 years now.  I have severe migraines that I get 4-5 times a week.  Sometimes they last for 4 days.  I have been on prescribed migraine medicine that doesnt help what-so-ever.  I have been put on depression medicine that is suppose to help as well but doesnt.  I went for an MRI about a month ago and found everything was fine.  I noticed about a week ago that my left ribcage is higher than my right.  And I started to get terrible vomiting and diarrhea.  Also terrible abdominal pain especially on the left side and back pain around both of my kidneys especially the left.  I didnt get my period this month but I am a virgin so its not pregnancy or anything.  I used to get my period every couple months but last year and this it has been regular.  This past week I have had neck pain and the migraines are much worse pretty much only in the morning.  I have been getting even more dizzy but its not the same kind as usual.  It comes on every couple minutes and only lasts a couple seconds but it feels like my head is spinning.  Usually when I get up or am standing for a little while I completly pass out.  I went to the doctor and he told me I was fine.  I dont feel like he really cares and feel like he is just blowing all this off.  I was just wonering if anyone had any advice.  Is it normal for an 18 year old to have this much pain.  I thought I was suppose to get this when I turned 80 or something. =]  Please let me know! I cant take it anymore!
                                               Ele84

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/11/2009 6:22 PM (GMT -7)   
No!!!! This is NOT "normal" for anyone to have this much pain, much less an 18 year old!

Welcome to healingwell by the way, we are soooo glad you found us.

Ok, I'm trying to think of anything I can to help you. What type of doctor did you see? (just your regular doctor?!?)

I had a friend who would pass out with migraines and part of it was because her blood pressure would drop in times of pain, unlike mine..which skyrockets.

Can you tell us what types of things they checked? blood pressure? blood sugar? hmmm, your MRI's came back ok

It really sounds like you may have more than one thing going on...
migraine
vomiting
diarrhea
back/kidney pain
neck pain
dizziness

Have you read anything about "cluster headaches" this "This past week I have had neck pain and the migraines are much worse pretty much only in the morning. I have been getting even more dizzy but its not the same kind as usual. It comes on every couple minutes and only lasts a couple seconds but it feels like my head is spinning. Usually when I get up or am standing for a little while I completly pass out." made me think to ask...

I just don't know where to start other than telling you, you need to see a headache specialist and DON'T GIVE UP...find a doctor who will listen to you and take you seriously!

Keep us posted?!
Sara
Sara-Migraine/Headache Forum Moderator
 
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Ele84
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/11/2009 10:21 PM (GMT -7)   
  Yea its just my normal doctor.  Ive looked at tons of different sites to try and get help and I watch that mystery diagnosis on TLC all the time and I just dont want to end up on it.  I ask my doctor if I could have anything like that and I think he thinks im just like a hypocondreac or something.  I dont think he takes me seriously anymore.  I havent talked to my doctor about cluster headaches.  He just says they are probably caused by depression or stress.  But I have hmo so in order to go to a different doctor I have to ask for a referral and he wont give me one.  I have an appointment to see a nuerologist.  My brother has epilepsy if that matters.  My mom said that she wants to ask the nuerologist about that because she said when I sleep I twitch really really bad and it looks like im having a seizure.  I have noticed that when I go to the doctor my blood pressure is usually low but my doctor says its not too low so its okay.  My dad has diabetes if that could influence anything.  And okay I will. Its nice to know that someone might actually be listening.  It gives me hope.
                               ~Ele

stronglady4me
Regular Member


Date Joined Jul 2006
Total Posts : 470
   Posted 6/12/2009 3:41 PM (GMT -7)   
Get a new doctor!
Stronglady4me
Walk in harmony


LdyJane
Veteran Member


Date Joined Jun 2008
Total Posts : 903
   Posted 6/13/2009 9:06 AM (GMT -7)   
I strongly agree with stronglady! Have a long talk with your Mom, tell her that you would really like to see a new Dr. You should not be put off by your Dr.! Sara is right, this is not normal and you need to be checked out by someone competent.

As far as thinking like you are a hypochondriac, it is common for people who have a lot of pain, a lot of unexplained, or undiagnosed issues to get to the point where they think ..maybe..it is all in their head..especially if you have a Dr. who is telling you so. I'm telling you, though, until you have a thorough workup to explain the issues you have, you cannot be told this, nor should you believe this.

Your family history and your mothers' visual accounts along with your story, should be enough to get you to a new Dr. that will listen.

I want you to sit down and start thinking about all that has been going on and start writing it down. Try to remember when it started, what happens, what kind of pain, where the pain is, how you feel, how long the pain lasts, be as detailed as you possibly can; it can and does matter. Then, I'd like you to start a diary, every day write down if you have had pain (Y/N) where the pain is located, how the pain felt (sharp, burning, dull, achy, etc.), when it started, how long it lasted, what you took for it. I'd also like you to start writing down what you ate during the day.

All of this information will become very important to the right Dr. It will show him/her any patterns and it will help you to remember details, because it's difficult to do so. I know this sounds like a lot Ele, but please try to do the things that I've listed and then make sure you let us know what is going on okay?

Hang in there..
Janice

peacesoul
Veteran Member


Date Joined Jan 2007
Total Posts : 2446
   Posted 6/16/2009 6:37 PM (GMT -7)   
ask your doc to send you to an endocrinologist to have your hormones/thyroid checked out.

Ele84
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/17/2009 9:37 PM (GMT -7)   
hormones/thyroid and endocrinologist. Can you please elaborate??

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/17/2009 9:44 PM (GMT -7)   
Ele-I think that writing down your pain, experiences etc is a great piece of advice. Sometimes I go blank when I get to the doctor and this way you can pull out your notebook and SHOW them..."on june 3rd you had level 5 pain, on the xyz area of the body etc...you napped for 2 hours, took a pain pill...etc"

I am not sure what the previous poster is alluding to, a little more information would be great. HOWEVER, I think you are starting off in the right place. An endocrinologist would ask if you have been to a neurologist first. (My Mom works for an endocrinologist, I am sure that he would ask for medical history first :-) anyway, for more info on what they do you can visit http://www.hormone.org/public/endocrinologist.cfm

Please, if you doctor refuses to give you a referral to see specialists...FIND A NEW DOCTOR. I think that is wonderful advice, remember you are paying the doctor and you need to be satisfied that they are doing the best for you.

Keep in touch,
Sara
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
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vickabee
Regular Member


Date Joined Jun 2009
Total Posts : 53
   Posted 6/23/2009 9:07 PM (GMT -7)   
My daughter is 15 years old, and she was told she had hemiplegic migraines because her whole left side would go numb. She passes out also. She also has seizures.

You should have your blood work done to see if your thyroid, Vitamin D, Calcium, Phospate, Vitamin B, etc. is where it needs to be. My daughter's Vitamin D was half of what it should have been and her calcium and phosphate is off also (she's had kidney stones now). Also, when she's gone out we've taken her to the firestation and they tested her sugar, and it was 54. From what I've read, you can go out from your blood sugar going too low, calcium too low, or blood pressure going too low. She has seen a heart doctor and he said her blood pressure drops and that is part of the reason she passes out. Also, she has an overly sensitive carotid artery and passes out if the left side of her neck is touched or she overextends her back to the left.

I don't know if some of these items were tested for you (vitamin in system, blood sugar after you've gone out, or seeing a cardiologist about your blood pressure dropping and making sure everything is fine with your heart), but at least we have a few answers ourselves. But we are still searching for some more answers ourselves.

God bless you.

tysmyboo
Veteran Member


Date Joined Dec 2004
Total Posts : 921
   Posted 6/24/2009 6:43 PM (GMT -7)   
great suggestions vickabee!!!

I am sorry your daughter is struggling so much with all this. Can you tell me, was her calcium high or low?

You can buy a glucometer at the drug store and keep an eye on her blood sugar at home!
Sara-Migraine/Headache Forum Moderator
Battling headpain for 17 years.
DX: occipital neuralgia-radiofrequency nerve ablation every 6mo
 
Thanks for Visiting HealingWell.com, Please Donate to keep Healingwell alive!
 
 
ER Treatment Form
 
 


vickabee
Regular Member


Date Joined Jun 2009
Total Posts : 53
   Posted 6/25/2009 3:58 AM (GMT -7)   
My daughter's calcium is low. Have the doctors ruled out kidney stones with the stomache and back pain that you're having also?

Ele84
New Member


Date Joined Jun 2009
Total Posts : 4
   Posted 6/27/2009 5:17 PM (GMT -7)   
Thank you so much for all your help. I thought I would give a quick update. I havent been to the doctor since the brain scan. I havent been able to get around to it. Most of the symptoms have started to go away. I no longer have diarrhea or vomiting. Most of the back pain and kidney pain are gone. I think I had a virus. But the dizziness is still pretty bad. I pass out two or three times a day but I usually catch myself before I totally blackout. The weird dizziness, which im starting to get used to, is getting worse. But like I said im getting used to it and it has become bearable. I have started to notice another weird symptom though. I have started to bruise really badly. I have never been one to bruise easily. I have four older brothers and no sisters so Im used to wrestling and getting thrown around but even getting punched really hard never gave me a bruise. But now I have them all over my legs, feet, and arms. I went swimming the other day at a family get together and everyone was asking where they came from. I told them I dont know and they all tell me it looks like Im abused. I havent started taking any new medicine or any amount of asprin which usually thins your blood so I dont know where it could be coming from. Any thought??
p.s. I have started the journal/diary of what I eat and what happens each day. I also wrote in the beggining my family history. It is coming about quite nicely.
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